Has anyone come off letrozole after 10 years this is my 4th day now and hoping the horrible side effects get better
Coming off letrozole after 10 years - Breast Cancer Haven
Breast Cancer Haven
I’ve still got four and a half years to go. Was on Letrozole and switched to Exemastane because of joint and muscle pain. Which is about ten percent better than Letrozole.
As it took only two days for the side effects of these drugs to appear, I have my fingers crossed that they will disappear after a few days.
So, please let us know how you get on!!
I will be coming of it soon..what horrible effects you got
I've heard that some people get side effects after stopping. I stopped my 10 years in April but had no side effects. I hope you feel better soon.
I have been taking for 5 years now, I don’t really get any side effects, I am probably lucky then.
I am waiting to see if I have to stay on them another 5 years! Mammogram and doctor appointment over due this year due to COVID everything delayed by 3-4 months I am told.
Coming off letrozole it may take a few months to get out system and then see what you feel like.
I have been without it on a couple of occasions for over a week. No Ill effects 🤔🤔🤔 I due to finish feb 2021 but they cannot get the only brand I will take so I off it again.
What effects have you got ?
Ive got a trigger finger insomnia joint pains going for hip xrays on friday using a walking stick theyre so bad. High cholestral. hyperparathyroid. High blood pressure bottom of left leg deformed i had none of these before i had breast cancer. I stuck the tablets out as was afraid of the alternative. I came off them on august 30th after 10 years and so far no change
I do hope you feel better soon, due to COVID, I’m not in Uk at the moment, and can’t see me getting there soon( they’ve shut the airport down) I will have been taking letrozole for 5 years in October, and because I can’t see the doctors in uk, I’m going to carry on, I was told either 5 or 10 years, so I’m not taking a chance, my Knees joints ache, so do my hips, and they click a lot, but better than the other option, take care,
Hi I was diagnosed nearly five year ago I had lumpectomy and 15 sessions of radiotherapy I was given tamoxifen but had to change because of constant recurring polyps in womb was given letrozole but changed to exemestine because of really bad aches and pains in most if my joints and back I still have problems with knees and fingers but trying to put up with it. I work in a school kitchen currently I used to do cleaning aswell but had to give that up because it was too much I still find my kitchen job quite difficult I was wondering if anyone still works and what kind of work and if there’s any advice as to wether I should continue. I’m due my last mammogram in January but will need to continue medication for a further five years not sure if I can keep doing my bit job but not sure of any benefits I could claim if I have to leave