This is my first post here and hoping for a little guidance/advice.
I was diagnosed in May with grade 3, ER+ HER2- breast cancer. Lymph node removal showed no spread, so lumpectomy and radiotherapy, along with taking Tamoxifen (oncotype result 17, so no chemo).
Haven't felt too bad physically, apart from severe cording following surgery, which is now almost cleared up and finished my radiotherapy yesterday.
What I have felt though is a bit abandoned since my op. I don't want to play the whole 'woe is me' card, but I haven't seen anyone face to face since the day of my op. I know this is mainly due to Covid, but no post-op physical follow up. We had to remove the dressings (well my husband did) to tell them over the phone how it looked, wasn't healed properly so had to request more dressings. No physio for my cording, again a phonecall (which they forgot to arrange) with a physio. Never met my oncologist, only 2 phone calls to tell me what treatment I was to have and now I've finished radiotherapy what next? I was told I would have a follow up call in 6-8 weeks either with onc or my gp....is that it now then? Is there usually a scan or something to confirm whether you are now clear or not?
I'm also concerned about the future in that no one has seen my breast since my op...how do I know what is now 'normal' as it feels completely different.
Sorry, just feel that communication and level of care I've received post-op hasn't been great and am wondering 'what now'. Just worried really and finding it hard to now just go back to life as it was.
Thank you for listening x