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JadeSlo16 profile image
9 Replies

Hi I’m 27 years old and was diagnosed with a high grade papillary carcinoma. I am a BrAc1 carrier also from my dads side. I had a double mastectomy in August and was told that was all I would need. However on removal of my breast tissue they found another lump at grade 3. I have now been told that that is triple negative and I am having to start chemotherapy and radiotherapy which I’m really nervous about. I’m also having to go through fertility treatment as me and my husband haven’t yet had children. Would be nice to talk to anyone who’s been through a similar experience.

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JadeSlo16
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9 Replies
RuthJ profile image
RuthJ

Hi Jade sorry to hear your news. I haven’t been through your diagnosis only radiotherapy for me. I am sure some of the other ladies will be along with their wisdom. Good luck on you’re journey Ruth x

Violetta25 profile image
Violetta25

Hi Jade

I too have had Triple Negative Breast Cancer and had a double mx with DIEP reconstruction and have just finished chemo but am post child bearing age.

I'm also a member of a Triple Negative Breast Cancer UK (TNBC) Support group on Facebook. There are quite a few younger members on there that might be able to help answer your questions.

Vgrady76 profile image
Vgrady76

Hi Jade...I to am quite young also to have had BC, I was 42 yr when I was diagnosed in June 2018, an well it hit me like a train, so I know how you are feeling, I only had Lumpectomy on a Grade 2 Stage 2 type of ER+ ...DCIS ...its a massive massive blow to hear that you will be needing the Chemotherapy and the Radiotherapy.....take everyday as it comes Hunny, and keep thinking there is another side to all this an you will get through it, that's how I coped...and of course the lovely ladies on here gave me advice also....keep us posted xx

carolinenailsea profile image
carolinenailsea

Its a lot to cope with and its horrible that you have to go through all this at a young age. As lots of posts will say, chemo is not much fun but it is do-able. You do come out the other side and generally many of us find the radio is much easier to manage side effect wise. I wish you luck with all the treatment. It does seem to go on a long time but eventually you do get through the other side. I dont know about fertility treatment but I am sure the doctors will help you through the complexities of cancer treatment alongside fertility treatment. Hugs and be kind to yourself. Caroline xx

MichaelDavid profile image
MichaelDavid

Hi Jade... I am so sorry to hear that you have breast cancer but don't take stress my mom was diagnosed with breast cancer 2 stage in 2012 and now she is cancer free and more focused and confident. So keep a faith in GOD and time will heal everything. If anyone wants to know about breast cancer so there is it.

cancerbro.com/category/blog...

I too am triple neg BRCA + had mastectomies followed by chemo, then had my ovaries removed and breast reconstruction after that. I didn't need radiation. I was already past child bearing years so removing ovaries wasn't a big deal for me. I can't imagine being hit with this stuff at your age. Stay strong.

JadeSlo16 profile image
JadeSlo16

Iv now decided against chemo and radiotherapy as there’s more complications with my Type 1 Diabetes and if I have chemo they can’t tell any way if it’s worked or not so now feel this is pointless. Having my ovaries out will be next option once iv had kids hopefully. Thank you everyone for your messages always nice knowing your not the only one going through it.

carolinenailsea profile image
carolinenailsea

I wish you good luck xx

TMoq profile image
TMoq

Hi Jade, I'm a little late to the chat...but hopefully my story can offer you some hope. 8 years ago, I was diagnosed with stage 3, grade 3 IDC (in my right breast) plus high grade DCIS in the left and I was just shy of my 31st birthday. Because mine was ER+ and HER2+ following a bilateral mastectomy I did do chemo, radiotherapy, Herceptin and then Tamoxifen (which I am still on). I am also BRCA (though BRCA2) and last year I decided to do a BSO (ovaries and fallopian tubes) + total hysterectomy.

My daughter was 10 months old when I first felt a lump so I was blessed to have one child. But we also managed to squeeze in fertility treatment before I started chemo and miraculously froze 10 embryos. With the help of an amazing surrogate here in the UK our baby boy was born four years after my initial diagnosis. I promise it does get easier and you are so right to reach out for support. If you have any questions regarding surrogacy, ovary op or anything really...please do not hesitate to ask. Lots of love and good luck xx

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