Hello

[Jeanmthorn123]

Hello..

I had my left breast removed back in August after only two sessions of TC chemo as each time I had bad reactions and landed up in hospital .. Still n herceptin until may....I'm just wondering does anyone else have bone pain, joint pain and general lack of energy,.. Some days I find it hard to even walk..

Thank in advance

[Maz1965]

Hi... I finished my Herceptin back in October and am still struggling to walk properly. Most of my pain is in my feet. Not sure if it is from the chemo or the Herceptin or just a combination of all the treatment that ive had. Some days are worse than others and different types of shoes. My energy levels are starting to pick up - Macmillan do a Move More exercise class in our area which has helped.

Roll on May when your heceptin is over and hope you feel better soon.

Tc x

[Hidden]

Hi Jean

I had a Mastectomy in August for triple negative cancer, followed by FEC/T Chemo, the first cycle of 'T' ie Taxol caused me immense issues, bone & joint pain being the worst! I only had the one Taxol due to my reaction plus 'Pins & Needles' in my fingers & toes!

The pain in my knees continues & I also have muscle pain but this is complicated by the fact I have PMR (Polymyalgia Rheumatica) as was my Surgery, l was advised not to have reconstruction due to my Meds (Prednisolone & Methotrexate)

I am seeing my GP tomorrow re the pain & to have bloods done to see if the muscle pain is due to PMR or after effects of the Chemo then I'll have that info when I see my Oncologist in two weeks, l too can't walk far with becoming tired but stairs/steps are a nightmare, I'm feel like an old lady!

Best Wishes xx

[Moirs1964]

I'm sorry to hear of your bone pain - I had that after taxol but it does go away in time. The tiredness does last a longtime though. I'm finished my chemo in March '14 and Herceptin in November '14. I've had a mastectomy and reconstruction since and am still tired!!! But I would advise that you have a bone density test done because chemotherapy does damage bone density and this will cause huge bone pain. I insisted on one when my treatment was finished and found out that I have osteoporosis!!. Good luck...

[lovesradio]

As if breast cancer diagnosis isn't bad enough the surgery and treatment leave us with all sorts of side effects. I was on taxotere and of all the treatments it was the one that caused me muscle and joint weakness and split nails that I still have almost 9 years on (the nails, not the muscle and joint ache). I have largely recovered energy levels but have left arm lymphoedema and some osteopaenia and osteoporosis as a result of treatment. Had a bone scan as a precursor to letrozole to get base line which is what showed up the bone impact.

But I am alive and I love my life....none of the side effects are stopping me led the life I want to lead!!

[Maggie60]

I was on arimidex & I experienced all of these pains .I am 6 yrs over my op.& feeling great. There is light at the end of the tunnel. I wish you well & keep your chin up.

[Ingeborg]

Oh yes! I needed blood transfusion during and after chemo also. Just remember: Herceptin kills the cancer, but does damage elsewhere. But most important is to remember, that as long as you can complain you are here to enjoy life. I had all of the above and often could not make it across the room. It effects everyone different. Things do get better...never the same, so don't expect that. At least for stage III cancer. I had inflammatory and tumor; two cancers at the same time, both stage III. It is now 4 years later and I am still loving my life. I wish you the best. Hang in there and be tough! Tough is the miracle word! (Some call it "strong".) Moan and complain when you must...I must at times and it feels great! Herceptin is hell, but it kills cancer! Without Herceptin I would be gone for sure. Some people have enough pains they love (need) to have their legs and arms massaged. My doctor gave me Oxycodone after chemo and it was a blessing. I watched it carefully and never abused it. Try to attend the meetings your clinic may have for patients or find one close to you. I found out so much from other women and it is so good to know what you feel and what aches you is "normal". I could not eat and lived of plain vegetable soup. I threw veggies into water, boiled it and drank it throughout the day. It was the only food I could tolerate; I could not swallow anything else, often not even water. Good luck to you!

[Jayne1964]

Hello i had 4 A/C and 12 Taxol chemo and I had terrible pain in my legs but it does get better and tiredness, just try and take a small walk every day and it will ease

[ARLENEGALVIN]

I'm getting herceptin too+ I get a bit of joint/bone pain. Not constantly+ now I've finished chemo I'm hoping it might ease off.