Help with after effects SAH required please! Currently suffering badly and don't know where to turn ☹

[Zena73]

I just stumbled across this website and wanted to share my experience with you as it looks like some of you may have experienced a similar issue to myself.

18 months ago I suffered a very random bleed (SAH). I was simply travelling to work when all this happened. Initially the doctors were of the opinion that they could do nothing for me as there was a massive bleed and had basically issued a DNR instruction for me and had written me off much to the disappointment of my distraught family.

But by some miracle and the will of god, I managed to move a little the night before they were due to switch off the life support. They operated on me the following day. I had weakness and my vision was also impaired on the right side. The doctor said that it’s called Third nerve palsy. I had physio to help me walk again I also had speech therapy to help with my speech.

I am now able to walk and talk albeit slowly but I still suffer with fatigue and balance issues. I went to a specialised neuropathy physio clinic that helped for a while with the stretching exercises etc. Now both my legs feel tight and I suffer with spasms nearly everyday which cause me excruciating pain ☹

[SAH-survivor]

Hi Zena, wow...how lucky to go through that, and be here today sharing your story to give others hope! I too had a SAH in August 2018. I had coiling and nearly 3 years later, am still recovering. 18 months is still early days, and you will feel much much better with time. I didn’t believe my consultant but he was right. I have daily headaches and take part in many natural therapies and try and keep busy. I’m not the old me but it’s taken me 3 years to accept that person will never be back so I am starting t o love the new me.

[Zena73 in reply to SAH-survivor]

Hi SAH-survivor thank you for replying to my message and sharing your experience with SAH at this moment in time. Like you say just try and keep yourself busy. You are definitely right and accept that I am not going to be the same person I was 18 months ago....but basically do the best that you can 😊

[Allisonmikey]

Hi , I suffered SAH in 2012 , I still suffer with balance and can’t stand or walk for long periods , however I’m back working full time and have minimal headaches anymore , I find that if I’m overtired or in situations where I get sensory overload ( supermarkets and crowded places in particular ) my speech goes and my legs go into spasm , I’ve been prescribed baclofen which has helped enormously with the leg spasms on a day to day basis , I also take magnesium and spray legs daily with magnesium oil spray and that appears to help too x

[Zena73 in reply to Allisonmikey]

Thanks Allison Mikey

Wow I can't believe that I can relate to most of the issues you have. Well done for going back to work full time !😁 I am beginning to think that I would have to give my job up😞 I am taking a career break so that will give me some time to recover🤗 I take magnesium tablets for my leg spasms as well. Can you tell me how you got the baclofen is it in tablet form or injection? I may ask my GP for some kind of muscle relaxant as it driving me crazy nearly everyday. Your message has made feel more positive now thanks

[Allisonmikey in reply to Zena73]

Never give up hope x

I take baclofen tablets 10mg twice a day , these were prescribed by my GP , wishing you well in your recovery 😊 x

[Jacmidlands]

You may find more support if you are on Facebook. There’s a Brain Haemorrhage Support group which you can join. It’s quite an active group. Good luck!

[Zena73 in reply to Jacmidlands]

Thank you jacmidlandsI will do that😊

[Troublenc]

I had third nerve palsy after a clip for an unruptured anerysum. It eventually mostly resolved.

[Zena73 in reply to Troublenc]

Hi Troublenc I have never heard of it till my neurologist discovered what it was. I still have have issues with my right eye I can see normally looking straight on and down but I get double vision when I look up (weird)👁️ I went to Manchester Royal eye hospital but they told me wait another 6 months as my vision keeps changing👀 and it's not worth having surgery at this time...only time will tell...i am prepared to wait and then can see what else can do for me 🙂 thank you for sharing your story and take care 🤗x