Hi everyone, new hear and just need to let off a bit of steam, and hopefully calm my wandering, panic mode, thoughts!!
After recently finding out that I had a suspected Pleomorphic Adenoma on my left Lacrimal Gland (benign tumour on the tear gland) I underwent a CT and then a MRI to diagnose the lump and to prepare for the surgery. On the 23rd January I attended the Manchester Eye Hospital (who are absolutely wonderful) to sort out treatment plan which involves surgical removal of the tumour and my tear gland. Whilst checking my MRI, the doctor aneurysm and has referred me to Vascular Neurosurgeon at Salford Royal. When she told me, I was actually too stunned to ask any sensible questions, but at my follow up apt on 16th Feb, I have found out I have a 5mm aneurysm, on the left side (same side as my Adenoma) and the name of the doctor I have been referred to.
The eye hospital are concerned the adenoma is growing (3.5mm growth from August to December) and want to remove as soon as possible, however the anaesthetist does not want to put me under till I have seen Vascular Neurosurgeon. I phoned Salford but after 3 weeks, they have not received my (emailed) referral and was told can take up 16 weeks for an apt!!!! I have had constant headache since early October and I put this down to the Adenoma but now I don’t know (Eye hospital say the headache is not related to the Adenoma and I should keep a dairy, which I am doing).
I am very shocked and worried, and although my aneurysm is relatively small, I do have a family history of these. My mum, grandma and cousin died after a rupture and my mum’s sister, who had a rupture, still has related health issues. I know I have to wait but I just don’t know what I can and can’t do!! The hospital and my GP just said to take it easy and if I get very bad headache, go to hospital!! What does take it easy mean? Two of the ruptures have occurred during sex, so guess that’s out for a while (not that I even feel like it at the moment) and I am doing the sensible stuff like cutting down on coffee, eating healthy etc., I previously had high blood pressure (as high as 220/110) but this is now controlled with medication but keeping an eye on it.
I did make the mistake of using google, but on the good side, I did find this site. There are so many cases where the aneurysms are just left and monitored, but how do you live with this? How do I get through each day worrying about if it is going to rupture? What can I do to reduce the chances of it rupturing and what should I avoid?
Sorry about the ramblings, and all the questions, but just needed to sound off.