It’s not available for osteoporosis but it is available for osteoarthritis at a cost of $3,000 total.
I asked what was the most effective drug for osteoporosis and he replied that it was prolia. Heaven help us if that’s all we have.
Back to square one for me.
Thanks for reporting back and sorry it was a disappointing outcome.
Oh that’s annoying isn’t it. Thanks for reporting back.
I think osteoporosis rates low for research and investment in how to treat it. We don’t have an actual doctor for it. It would be the same doctor that we go to for diabetes. Diabetes is taken care of quite well but Osteoporosis is not. There’s not one easy answer for us like a safe and effective medicine. It’s not just a few side effects, we all take medicines like that but the few osteoporosis drugs on offer don’t even solve the issue like making new bones and making them stronger. Diabetic drugs lower blood sugar. Crohns medicines address very effectively the problem. It’s frustrating and there’s no answer.
Thank you for reporting back disappointing of course but hopefully they might consider stem cell therapy for osteoporosis some time in the future as it is a common problem ,unfortunately to date they only offer drugs which don't do much good and sometimes harm, I refuse to take any of the osteoporosis drugs .
Yes I feel the same. The doctors don’t seem to know much and haven’t looked into it very deeply. You say something you’ve learnt in your readings and they have no knowledge of it. I asked the doctor yesterday who is not a GP but a Sportsmed specialist who treats complicated cases either through sports injuries or other people with serious mobility issues. He mentioned side effects but these problems with the meds go beyond side effects.
Have you considered red light therapy?
What is it as never heard of it?
I have never used it but would certainly willingly to try it and it’s on my list of things to ask about the next time I see my doctor. I first learned about red light therapy from the news, there was a report about it being used to help with certain vision issues. Then, about 10 months ago, I signed up for a week long on-line osteoporosis event—there were multiple webinars each day covering everything from A to Z related to osteoporosis (diet, exercise, stress, supplements, etc.) and at least on session was on red light therapy. I’ve researched the topic a little and it seems there is ev tot can help with back pain, speeding healing (even of bones) and in increasing or stimulating bone formation.
my.clevelandclinic.org/heal...
verywellhealth.com/red-ligh...
Sorry your appointment was disappointing. Hopefully there will be some breakthroughs in prevention and treatment, but it all takes time to conduct the research and then make treatments available.
Researchers are studying peptides, but if it goes anywhere, it may take many years to result in treatment and may be unaffordable for many.
sciencedaily.com/releases/2...
Hi! There are other things but I think Prolia is the one the Drs first turn to. Probably the cheapest too. I was on Terraparatide for two years and I know this to be very expensive. You can only have it for two years. I’m now on Prolia and have been for more than a couple of years. I have a Cousin that has been on it for several years at least five or six. I never knew at the time about all the hype about it but both my Cousin and I have been absolutely fine on it with no problems. Obviously we are all different and there might be the odd person that will get things but you can get this with any medication. I can only speak as I find. If you decide to take it hopefully you will be fine too. I can’t have the normal dentist injection because the Adrenalin makes me shake. Millions have that injection and have no problems. I just had a small op on my leg and had to have an anaesthetic in it. The Dr put the one in without the Adrenalin. As with all medication you don’t know until you take it.
I hope that helps.
just to add. My bone density is improving albeit very slowly. My spine was -5.5 and is now -4.2 or 3. So better than it was but still prone to fracture.
it’s like I always say. We are all different. It suited me fine.
I know someone who had the stem cell therapy for osteoarthritis. She said it lasts one year and can't be redone. After one year the pain came back and she had a hip replacement. I am not sure how it would work for osteoporosis. I had one injection of reclast and now I am seeing a different osteoporosis doctor. He said he would do some blood tests and I might only need an injection every two years.
If stem cell therapy only lasts one year then there is no point to it,not to mention the expense for a temporary fix. I am skeptical about the Dexa tests too I haven't had one in years since I found out it compares your bone density to that of a 30 year old athlete,I never was an athlete not even at 30 years playing competition squash .
Read about red light therapy being good for fractures but there doesn't seem to be any science behind it so the jury is out on that one too.
HRT specifically estrogen seems to be the only one I know of being backed by science for preventing bone loss and am currently experimenting with it.
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