Osteonecrosis of the knee: Necrosis of the knee... - Bone Health

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Osteonecrosis of the knee

ChristineK profile image
14 Replies

Necrosis of the knee:

Has anyone had this condition? If so, I would greatly appreciate any advice, as I suspect that I may have this condition.

14 Replies
HeronNS profile image
HeronNS

I don't know anything about it, except what I've just read on the internet. What makes you think you have this condition?

nyulangone.org/conditions/o...

ChristineK profile image
ChristineK in reply to HeronNS

Hi HeronNS, The whole story is too long and drawn out, as it would take me too long to explain the whole story here and now, but I just wondered if anyone else was in the same position. I am worried that I may have this condition and am getting little help from my orthopaedic consultant.

HeronNS profile image
HeronNS in reply to ChristineK

Any chance of getting a referral to a different specialist? Second opinion and all that? Good Luck.

Mavary profile image
Mavary

I’ve heard about it but I don’t have it so can’t help you. Sorry! Someone might come along with the condition.

ChristineK profile image
ChristineK in reply to Mavary

Hi Mavary, thank you for your reply.

Mavary profile image
Mavary in reply to Mavary

I remember where I heard Osteonecronosis. I’m on Denosumab and I think that’s what they warn you about in the jaw. The drug can cause it. I think it’s degeneration of the bones.

ChristineK profile image
ChristineK in reply to Mavary

Yes, the bone can collapse and dies. I was surprised to learn that drinking too much alcohol can cause necrosis, also steroids can play a part.

Mavary profile image
Mavary in reply to ChristineK

I think lots of things are really bad for us. But we can’t avoid everything.

elaine2447 profile image
elaine2447

I'm sorry to hear you are obviously suffering. I presume it's a wound that is not healing. I haven't heard of this in the knee but in the jaw caused by bisphosphonates, generally the infusion. This is when there is a tooth extraction and doesn't heal. If you have any open wound, don't leave it, it needs extensive antibiotics.

elaine2447 profile image
elaine2447

I've since been googling and was surprised to see osteocrenosis doesn't just affect the jaw. Please ask your specialist or gp about it rarediseases.org/rare-disea....

ChristineK profile image
ChristineK in reply to elaine2447

Hi again, I am already under the care of an orthopaedic consultant, but getting very little help from him.

elaine2447 profile image
elaine2447 in reply to ChristineK

Sorry to hear that but sadly not surprised.

elaine2447 profile image
elaine2447

orthoinfo.aaos.org/en/disea...

ChristineK profile image
ChristineK in reply to elaine2447

aaa, ,,

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