im confused and worried about my bone health, so i wanted to try get advice from here aswell as posting on the thyroid forum. Please if anyone knows about this, or can offer any other advice on how to improve my bone health , its much appreciated.
A brief recent history..... Ive been self medicating with T3 since about april , and feel much better ( i was on 125/100 mch levothyroxine alternate days, reduced that to 75 mcg and added 12.5 mcg tyromel ( gradually to start ) ) as far as thyroid symptoms are concerned i feel pretty good, and i dont have bradycardia any more.
last call i had with this Endo was about 4 months ago, he told me to reduce my levo to 50 mcg a day but continue with the T3, as i needed to bring my tsh down , saying he really wants to help but legally cannot prescribe T3 until my tsh is higher, he was also concerned that my Dexa scan showed early stage of oesteoperosis .
So.. i reduced my levo and with a week i started feeling faint again ( the issue i had before going on T3 was fainting and bradycardia , severe fatigue and worsening fibromyalgia symptoms ) I called my gp , he immediately put my prescription back to what it was . My most recent blood tests show my tsh still supressed but my t3 and t4 is actually a bit lower than last time ( both times ive been on T3 and same doses, my meds not taken for 25 hrs, so exactly the same both times so whilst my t3 may be false low i find it a bit weird its going lower )
Anyway i feel ok and think this dose feel correct , my metabolism is normal for the first time in my life, and im not getting dizzy or faint, my bp and heart rate is normal for the first time in decades.
My concern is my bones, because ive just also been diagnosed with oesteo arthritis.. been getting severe cramping and pain in my hands and have a hip defect, which causes a lot of pain, aswell as degenerative disc syndrome in my upper back. So i am concerned to be told im on the verge of oesteoperosis, as this is showing mainly in my hips and back aswell.
my TSH is 0.01 - has been exactly the same for several years despite my levo dose or t3 and t4 level going up and down within range over the years due to changes in dosing my tsh remains suppressed
So this phone call, i explained to the endo i had tried to reduce my levo, as he asked, to bring my tsh down, but i couldnt cope with the effect. He kept talking over me, and saying he wants to help from the bottom of his heart, because im telling him i clearly feel better.. then he said he would prescribe me T3, ( hooray! but only till next check up, and if my tsh was still suppressed he would have to withdraw the prescription. ( eh ??! :$ ) I asked him how can i change my tsh without reducing my meds and feeling awful? .. he didnt have an answer. Then he asked if id had a dexa scan and looked that up, ( it was done about a year ago) then he said because it showed early stage osteoporosis ' which is very severe for my age ' he then back tracked saying that he cannot prescribe me T3 because with suppressed tsh and bone condition he cannot legally prescribe T3, and even if i went private no doctor in the country will do because of the high risk of bone issues and heart issues.
Weird thing is that the last endo, said the dexa scan showed pre osteoporosis, and when i asked how bad it was he said it wasnt too bad .. he said he would put me on T3 in april when the law changed or some other reason, but then he left the hospital and so this endo is a different one.
I tried to ask, can i improve my bone health in any way ?.. i tried tp explain i am taking calcium, vit D and K2 mk7 for my bones, i didnt even get the full sentence out before he talked over me - he wasnt willing or able to give me any other advice at all. Just said hed make an appointment for blood tests in 4 months and another dexa scan in 4 months too. Then repeated that if i can get my tsh in range he will consider prescribing T3, I asked again could he give me any info or advice on how to do this without making myself sick and getting bradycardia again, he said he couldnt! He wouldnt do a dexa scan any sooner either, or give me an answer to whether my bone structure could improve from pre osteoporosis, by eating better and taking suppliments. he simply could not give me any advice at all.
I am VERY concerned about my bone health and need to know if i am damaging my bones by taking T3 ?
I know many of you advocate T3 and i understand why, as i do feel much better, but i dont want to continue if im going to be a cripple in a few years because of it .
Please bear in mind im 53, i really should not be getting bone issues at my age, I am often in agony and whilst i feel much better in myself and my energy level, the pain im getting in my hips and hands is becoming severe recently. Ive increased / remembering to take my suppliments and getting less cramps
- I take multi b vits ( with folate) gentle iron, vit c, vit d, calcium, zinc magnesium k2mk7, all the correct versions of everything thanks to advice here .
I havent re tested since my last post, so there is info on blood tests on there.
If this doctor IS scaremongering me, then please can someone provide links to actual medical evidence that i can add to an appeal to a second opinion. and to put my mind at ease .
Any advice much appreciated. thank you