My 3rd infusion is due in October 2021 . I spoke to the Rheumatology Consultant in Oct 2020 and he said then that after my 3rd infusion he would review my case and probably discharge me from Rheumatology. He thought that no further treatment would help and advised strengthening muscles in my back and trying to take as few pain killers as possible!
I'm still in pain particularly after standing for any length of time also bowel issues everything squashed in due to kyphosis. I don't feel happy about being discharged from the Rheumatology Dept. It would take for ever to be referred back to them via GP if I had any ongoing issues with Osteoporosis. In my case I saw the Consultant privately in 2019 and he then transferred me over to NHS .
I'm presuming I'll have another Dexa scan this year or will I have to ask for one to be done , otherwise I'll have no idea if the infusion has helped or not.
After the 3rd infusion what happens next regarding any treatment , I just read another post saying you can wait for two years and then start infusions again but that can cause more problems with bones. Has anyone had experience of finishing the infusions and what happened next in their particular case. Thank you.
I've found this site very informative and helpful in addressing the sort of questions we all have but we can't obtain answers from the medical professionals particularly now with Covid.