Hi, looking to hear back from anyone who has had any experience with symptoms of atypical fracture of the femur.
A couple of months into my first injection of Prolia amongst many other side effects I began to feel pain like a deep ache in my upper front of right leg with groin and lower hip pain.
Seven week ago it got worse and I felt more pain on putting my foot to the ground, but then this subsided whilst away on holiday for 4 weeks.
Then on Monday of this week suddenly in the evening I could not put my foot down and had to go up the stairs on all fours as the pain was so bad. Once in bed I could not change position as when I tried to move the pain became excruciating in the top front part of my leg.
Since Monday it's ached and felt sore.
I contacted ROS nurses and also the hospital, who advised because of being on Prolia I should get X ray done. Went to see GP who did not have any knowledge of Atypical fractures of the femur other than the hospital had sent him a letter to say I was on Prolia and there is a risk of this occurring.
He sent me for an X ray but initially he was only going to have my pelvis Xrayed until my husband told him I needed to have the long bone Xrayed.
I'm feeling confused and very apprehensive. On trying to read about this type of fracture it is very clinical more aimed at the professional rather than the patient.I am reading that these fractures don't usually show up on a first X ray. So where does that leave a person if something is going wrong?
It may be something muscular, and that is what I would be thinking had I not been treated with Prolia and also in the past with Bisphosponates.
I so wish I had not agreed to have Prolia as a treatment.It is awfull to live ones life with the worry of WHAT IFs. I would really like to read of others experiences. Is there anything I should or should not be doing? How are these fractures treated?