Osteonarcosis

[Mags72]

Does anyone have this?

[Met00]

Do you mean osteonecrosis? If so, I just looked it up and it sounds nasty. Do you have it, and how does it affect you?

[Mags72 in reply to Met00]

I'm not sure, the orthopaedic said it's a possibility and I'm waiting for more tests

[angryandfrustrated in reply to Met00]

Yes, the oral surgeon has said I do have Osteonecrosis, and Prolia is the likely cause. Dead tissue has been dug out of the tooth extracted are twice. My body seems to reject bone graphs, so I no longer have any. My body is trying to heal itself. Healing is progressing slowly. I am hopeful that with continuing oral rinse on the area twice a day, and good oral hygiene I can beat this. Meanwhile no hip surgery seems unsafe, and an exit plan moving forward after stopping Prolia is complicated because many of the alternative drugs they usually switch to also causes Osteonecrosis so they are not appropriate in my case. We are still trying to figure out a long term plan. Taking Prolia has been a life changing mistake. I fear most exercise now for fear of fractures. DON'T TAKE IT!

[Misty72 in reply to angryandfrustrated]

I'm sorry to hear your having such a bad time, hope things improve soon. If you don't mind me asking what is prolia? I have been told I don't have Osteonecrosis, thankfully. My problem is I broke my hip and have a screw put in and the bones collapsing round about it. Will likely need a hip replacement soon.

[angryandfrustrated in reply to Misty72]

Ok, here is the quick version based on my gathering of information and personal involvement:

Prolia is an Osteoporosis medication given by an injection every 6 months. It works off the immune system and the generic name is Denosumab. It is involved in bone remodeling and bone resorption rate. It works differently from the Bisphosphonates (like Boniva) , but both drugs list Osteonecrosis of the jaw as a side effect. Getting off of Prolia is proving complicated: increased risk of fractures, and a rebound effect, being my bone density, Vit D and Calcium reads could decline rapidly and be worse than when I began. I am fearful of hip replacement while suffering these effects so I have postponed. Meanwhile, I am limping and activities are compromised.

[Misty72 in reply to angryandfrustrated]

Oh dear that all sounds really painfull and it obviously must limit your mobility. I hope the doctors etc can find something that helps you have a better quality of life.

[angryandfrustrated in reply to Misty72]

Thanks. Failure is not an option - I'll keep fighting back.

[HeronNS in reply to angryandfrustrated]

Is teriparatide a possibility as a bridging medication when you discontinue prolia?

[angryandfrustrated in reply to HeronNS]

Don't know, good question. I'll try to find out. Right now the doctor is checking my bone reabsorption rate. He mentions maybe going on daily injections at some point. (I didn't ask of what, and who administers) Yuck!

[LynneH-19]

Hi Mags72. Do you think you have this?

It is a nasty condition and can be associated with OP medication, BUT there’s also a connection between bone loss due to OP and tooth loss. See the following

dentistryiq.com/articles/20... -do-with-oral-health.html

[Mags72 in reply to LynneH-19]

Hiya thanks for replying, tbh I'm not sure what's going on with my pain whether it's nerve damage or bone related? What is OP?

[Kaarina in reply to Mags72]

Hi Mags,

OP is Osteoporosis. This is a community for those who have osteoporosis or osteopenia.

Osteoporosis is a medical condition in which the bones become brittle and fragile from loss of tissue, typically as a result of hormonal changes, or deficiency of calcium or vitamin D. It can also happen as a result of taking certain medications for a very long time.

[LynneH-19 in reply to Mags72]

Hi Mags. OP is the abbreviation for osteoporosis. I assumed you have this with visiting this forum.

Sorry but I have only just read your other posting, with reference to your broken hip.

Have you had a DEXA scan done to check your bone density for osteoporosis? If not request one. Also get your vit D blood level checked. In the U.K. some GP’s are very laxed about requesting these tests.

Best wishes

[Jayge in reply to LynneH-19]

Here in US, my doctor has calcium and D checked before each Prolia injection.

[LynneH-19 in reply to Jayge]

Hi Jayge

I’ve never had Prolia so I’m not familiar with the routine. How long have you been on it? Would you recommend it?

I’m still undecided what to go for now that my Strontium Ranelate is almost finished.

Best wishes

[Jayge in reply to LynneH-19]

I get my fourth in January. Make sure you will not need implants or extractions. That is my big concern as i tend to need implants. Husband had about so five next due December for next. He has had no reactions.

A woman in

My exercise class is also on Prolia and doing okay.

I do not believe you can exercise and cure osteoporosis. I have been physically active and kept slender all my life yet my hip neck was not great.

My spine fairly good.

Prolia can improve your numbers as mine improved 8 percent.

Other drugs beside Prolia run dental risks. If you are not too bad though you might still be able to build bone.

Bone building is best done by using weights and walking I read,

Hard decision.

[Jayge in reply to Jayge]

This is Jayge making correction in my sentence. My husband has had five

(I refer to his Prolia injections not implants as he had no implants.

[Rosepetal60]

Or do you mean Osteonecrosis ?