Raloxifene, please tell me the pros a... - Bone Health and O...

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Raloxifene, please tell me the pros and cons

MaryAnnxyz profile image
6 Replies

I have taken Alendronate Acid and Risedronate and suffered side effects. (I stopped taking Risedronate six weeks ago and I still have a burning pain in my stomach and disturbed sleep at night.)

Please can I have some feed back about Raloxifene? I'm interested in anyone's experience with this treatment.

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MaryAnnxyz profile image
MaryAnnxyz
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Rataf profile image
Rataf

Sorry I’m not offering advice but I too would like to know the pros and cons with Raloxifene.

Rosepetal60 profile image
Rosepetal60

Raloxafine if I remember rightly ( apologies if I'm mistaken) is made by Evista and I took this for about 3 years. At first side effects were not too bad and I was able to cope with the hot flushes and cramp in my calf and feet But as time went on the cramp in the Calf of my legs got steadily worse, it was the worse type of cramp I have ever experienced. It attacked suddenly in the night if I turned over or dared to stretch out or for no reason, so I soon learned not to do any stretching. I'd have to get out of bed as quickly as I was able and try and relieve the pain. The next day , my leg would feel bruised and painful. I Think after about 2 years my left hand and wrist started to become swollen and it was getting difficult to turning taps on and off. ( in hindsight, if you check out the patient leaflet, it does mention this can happen) I finally had to stop using that arm. So it was then, that I stopped taking the Evista. After many, many months my left arm improved gradually. I think the reason I took it so long, was because I'd tried I think 3 other osteoporosis drugs all with horrendous side effects for me so I presume I thought this was my last chance. The one good thing it did do was to improve my Dexa scan results. I also have to add that I have a very sensitive system, so my toleration of prescribed drugs is very limited.

Rataf profile image
Rataf in reply to Rosepetal60

Thank you Rosepetal 60. My rheumatologist suggested this drug. Not keen to take AA but this doesn’t sound too great either. Will continue with exercise,Cal,Vit D and K2 will also try magnesium.

Rosepetal60 profile image
Rosepetal60 in reply to Rataf

I put off taking the AA till last and really regretted taking 2nd dose. First dose affected left hand, second dose "attacked" right hand mega and stayed in my system for about 11 months. The pain in my hands was awful and I had to wear splints for support on both hands at one stage as recovering from the Evista with left hand and the pain from the AA with right hand and wrist. It was at this time that I saw the Endoronologist who wondered if I might have Rheumatoid Arthritis and arranged a blood test for me. Great worry, but it turned out I didn't have RA. Relief. I don't take anything now except the Calcium and vit D combined via surgery plus certain organic milled seeds to help getting magnesium into my system along with eating green veg twice a week on the advice of a Dietician because I can't tolerate the magnesium taken in tablet form as it causes for me extremely loose stools. I have read that other peeps can be affected with the magnesium tablet in this way but many are not. Also taking Vit B 12 and B6 when I remember!

Kaarina profile image
Kaarina in reply to Rosepetal60

I do not have any problems with taking magnesium glycinate but other types of magnesium produced loose stools for me.

Rataf profile image
Rataf in reply to Rataf

Oh that’s interesting about magnesium. I’ll get it through diet instead.

Good you don’t have RA. I have AS Ankylosing Spondylitis.

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