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Experiences with
Stem cell and bone marrow transplants
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Stem cell transplant
cell
transplant
team my conversation was very grim and my chances of coming out of hospital alive are small her words were if she took 100 patients like me down she would be happy come back with 1 I have a 5 per cent chance iam young so that goes in my favour and I have a 12/12 match but iam high risk
cell
transplant
team my conversation was very grim and my chances of coming out of hospital alive are small her words were if she took 100 patients like me down she would be happy come back with 1 I have a 5 per cent chance iam young so that goes in my favour and I have a 12/12 match but iam high risk
Leighcox85
in
MPN Voice
3 days ago
stem cell for et?
Would
stem
cell
transplant
be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would
stem
cell
transplant
be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
23 days ago
Stem cell transplant
Hello, Has anyone woth AMN here ever had a
stem
cell
transplant
as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
Hello, Has anyone woth AMN here ever had a
stem
cell
transplant
as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
A7x1823eb
in
AMN EASIER
1 month ago
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Glad to see more and more players are jumping into the stem cell therapy
https://sbiomedics.com/eng/products/ted_a9.php https://parkinsonsnewstoday.com/news/embryonic-
stem
-
cell
-
transplant
-safety-parkinsons-trial/
https://sbiomedics.com/eng/products/ted_a9.php https://parkinsonsnewstoday.com/news/embryonic-
stem
-
cell
-
transplant
-safety-parkinsons-trial/
Farooqji
in
Cure Parkinson's
1 month ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my
stem
cell
transplant
has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my
stem
cell
transplant
has anyone else gone through this process?
Grizly
in
MPN Voice
6 months ago
One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
3 months ago
Still on hold for stem cell transplant
The good news is, they have identified a primary and a secondary donor for the
stem
cell
transplant
. They tell us to plan to proceed in 8 weeks. In other news, extensive studies of the bone marrow showed zero CLL. but "only 20% cellularity."
The good news is, they have identified a primary and a secondary donor for the
stem
cell
transplant
. They tell us to plan to proceed in 8 weeks. In other news, extensive studies of the bone marrow showed zero CLL. but "only 20% cellularity."
dwolden
in
CLL Support
1 month ago
Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
1 month ago
Momelotinib for Myelofibrosis
She has also asked me to consider
stem
cell
transplant
. I wonder if there is anyone on the forum who has been approved for Momelotinib and, if so, how it is working. Any info would be appreciated as it is a difficult time for me right now.
She has also asked me to consider
stem
cell
transplant
. I wonder if there is anyone on the forum who has been approved for Momelotinib and, if so, how it is working. Any info would be appreciated as it is a difficult time for me right now.
Cazbolac
in
MPN Voice
15 days ago
SCT journey update No.2
Anyway my Nuclear medicine tests have come through as “normal”, so just have X-ray and lung function tests to do before I see my consultant @Addenbrookes in a couple of weeks time who will confirm the plan of action towards
stem
cell
transplant
.
Anyway my Nuclear medicine tests have come through as “normal”, so just have X-ray and lung function tests to do before I see my consultant @Addenbrookes in a couple of weeks time who will confirm the plan of action towards
stem
cell
transplant
.
LFCLove
in
MPN Voice
26 days ago
Post stem cell transplant vaccinations
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Platelets2022
in
Leukaemia CARE
7 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Have seen consultants @Guys & now @Addenbrookes to see if I’m a candidate for
stem
cell
transplant
. All agree and they have started to check the donor registers for possible matches.
Have seen consultants @Guys & now @Addenbrookes to see if I’m a candidate for
stem
cell
transplant
. All agree and they have started to check the donor registers for possible matches.
LFCLove
in
MPN Voice
2 months ago
have you had trouble getting approved for stem cell transplant?
He believes I am a perfect candidate for
stem
cell
transplant
. So today I go to the consultation with a
stem
cell
specialist and they tell me that because there is a 10-8% chance of failure at their facility I’m not at high enough risk to need the SCT.
He believes I am a perfect candidate for
stem
cell
transplant
. So today I go to the consultation with a
stem
cell
specialist and they tell me that because there is a 10-8% chance of failure at their facility I’m not at high enough risk to need the SCT.
Plasmapool
in
MPN Voice
3 months ago
Travel and Ibrance
My medical history is complicated by having had a donor
stem
cell
transplant
in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and going out to public places.
My medical history is complicated by having had a donor
stem
cell
transplant
in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and going out to public places.
Artesa
in
SHARE Metastatic Breast Cancer
23 days ago
High BLood Pressure, Kidney failure, cause discovered
Scheduled for a
stem
cell
transplant
end of April, or early May.
Stem
cell
doctor told me my kidney function should return to normal with the transplant. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
Scheduled for a
stem
cell
transplant
end of April, or early May.
Stem
cell
doctor told me my kidney function should return to normal with the transplant. I am writing this in case any one else has failing kidneys with high blood pressure and no clear answer why.
phebamom
in
High Blood Pressure Support
2 months ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
9 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Sorry I've been absent for so long, my
stem
cell
transplant
journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond.
Jm954
Administrator
in
CLL Support
7 months ago
Start of my Stem Cell Journey 0.3
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
The Good news is I have now been given a provisional date to start my
stem
cell
transplant
17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.
Grizly
in
MPN Voice
6 months ago
Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
10 months ago
pink patches on skin
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Anyone else experienced similar after their
stem
cell
transplant
. My hospital treatment has been amazing . The staff and nurses have been wonderful . Faced with a median life expectancy of 35 months I decided to go for the SCT . I’m so glad I did .
Tortina
in
MPN Voice
8 months ago
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