Last month I was told I have a 9x9x7 HCC tumor in segment 6, maybe 7 too... I have had 2 biopsies, one MRI, a CT scan and am interviewing multidisciplinary teams this week here in Colo. and Texas. Maybe I should ask for a PET scan? I have been told there is small possibility of it having spread. Last week Mayo Minn. asked me to participate in a trial with EBRT and DC's. Things seem to be moving really fast and I am trying to learn about the available/approved drugs and treatment options, before I commit to "conventional" treatment and surgery...
I am leaning to participating in trials of vaccines and immunotherapies and combination therapies, not chemo, radiation, and surgery as the only answer for a cure. I have been told that TACE, chemo, and resectioning is the cure. But, most teams seem to be led by surgeons and surgeons sell surgery. Research finds answers. I had 5 of my Family pass in 9 months from cancer in the 80's; I am not sure if the cancer took them or the chemo and radiation, before any of them could even get to surgery. Most were caught too late for the treatments available then... and, research was just breaking through the chemo, radiation, surgery models...
So, I have been through trial chemo drugs for Hep C years ago, and was cured, although the drug I used was not approved because of extreme side effects and deaths. Each week I was in oncology for procrit for anemia and had multiple blood transfusions. It was 6 months active and 2 years before I felt full recovery. My liver function was restored, is still good, and I continue to consider myself "healthy".
But this is how advancements are made that help others. By volunteering, when the opportunity presents itself to travel, meet new people, learn new things, possibly be a living investment in the future of others, that counts. Since I am a man of strong Faith, I believe this is happening for a reason that will bless others, somehow. If for the chance to share a positive testimony, represent hope, I could be happy.
Someone said: "if you are to get what you have never had, you must be prepared to learn what you have never known, and do what you have never done".
I pray for each of you in challenges, especially you that are caregivers, those that support and fund cures, and for those who will not give up the fight to help find answers. God bless you all.
I will continue to share my experiences, don't give up.