I’m new to this forum. My husband was diagnosed with non-alcoholic fatty liver disease cirrhosis and HCC liver cancer in July 2018. He will require a liver transplant to survive and our surgeon told us he would not make it to a deceased donor. Our wonderful radiologist has kept him alive thus far. We have had many people offer to be living liver donors, but only 2 have qualified for testing and they both failed to pass. We are hoping our next candidate can go in for testing in January, (crossing our fingers again). However, he has recently began developing more of the symptoms of upcoming liver failure; ascites (drained once), itching, almost constant nausea with bouts of vomiting, signs of mental confusion, easily bruised, etc.
I have a good support team, but I’m reaching out here because, frankly, I’m terrified about his eventual mental decline. He is a wonderful person whom I’m very much in love with. I’ve read that encephalopathy can cause personality changes among other things. It would be so helpful to know what to expect from someone who has gone through this. I’m not sure how I’m going to handle it if I lose him before his body goes. We are hoping we can find a living donor in time, but as time goes on and the symptoms mount, keeping up hope is getting harder. Thank you, Laurel