Blackpearl (Jaycee) update.
Sadly, Jaycee’s had some setbacks with her transplant recovery. It would appear that her immune system is attacking the liver....
My ‘ crossover ’ MPN has transformed to Myelofibrosis ( confirmed by BMB ) and my new consultant has decided that the only medication is Ruxo...
Thomas is at home!
Some good news here, Thomas was discharged the week before last and has been settling in well at home. Matthew is still in hospital and now w...
Ibrutinib. To take or not?
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions....
Update from Laura for whoops! bad news:
Well, after my CA-125 rose from 10 to 69 in the 3 months from my first post treatment check up, with no symptoms and feeling like the poster ...
Mets Everywhere..plse help
My dads cancer has spread to liver, lungs, lymph nodes, kidney and bone marrow. I am utterly devastated and in shock....
Periods on rivaroxiban
Hi has anybody had bad periods on rivaroxiban? following 2 blood transfusions I’ve had the coil fitted and still losing to much blood I have ...
I had endometriosis in the past & back in 1994 I had the laproscopy surgery which is when the Endometiosis was found! But in 2008 I had my fi...
The preliminary results from my 800 calorie per day diet are very promising. After 3.5 weeks my blood sugar and cholesterol have both come do...
After seeing my GP on Thursday following 23 days of flooding ( aged 56 ) I had blood taken on Friday at 10:15am expecting my results availabl...
8 Years Of Negative Life Changing Events
Have y’all ever just sat back and started writing ( say what has happened to you/ your family )... say in the last 8 years- well I did last n...
I wanted to reach out and say thank you to those who gave our family hope, information, and support over these past 2 years. My dad passed aw...
Anyone else having to battle each time they need an iron infusion?
The main reason they missed the PA was due to an ongoing iron anaemia which was disguising the cell shapes on blood tests. The prospect of ha...
My dads AML at 81 years
My dad of 81 years old has been diagnosed with AML and given 6 months to live. He is a very fit man and has no immediate symptoms....
Solve the problems
It started with blue fingers which I have had problems in the past with Raynaud's , Lupus,Lupus anticoagulant , May-Thurner , vertigo !...
Hi to all-
Dad and I ( Deb ) have been following the site but first time for posting. Thank you all for sharing....
Getting old is no fun!
Having been on pred for PMR since Jan 2014, and then developing Arthritis, I thought that that was the lot, but Oh no....
Response with Lu PSMA 's first cycle for my father.
Hello Everyone, I hope you all are slaying the big C each moment and emerging fitter and better by the day. Since i took your feedback and op...
In January I have appointments for breast screening, audiology, ophthalmology, stroke clinic, dentist, urology, haematology and that does not...
This is my 3rd hospitalization for end stage renal failure since August.. I was on chemotherapy and mass doses of Prednisone....
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