I wanted to reach out and say thank you to those who gave our family hope, information, and support over these past 2 years. My dad passed aw...
Have any of you had a blood transfusion in the past? Just wondering if that might be a common factor?...
Venetoclax CLL 11q, Trisomy 12, MDS
Good day to everyone. I observed for a couple of weeks and felt the love....
Due to start this on Friday... despite several blood transfusions!...
Can’t say I’m glad to be here but am happy to have a forum for more information and I hope some direction. My wife initially found this but I...
Have just returned from the Marsden where for the first time recently, everything seems to be good. (!)...
AIHA and ITP
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on hig...
Oncologist told my Stepdad there is nothing else he can do for him.
My Stepdad was diagnosed last August with stage 4 prostate cancer that metastasized to his bones. They started him on taxatere * and his plat...
Bone marrow still not producing red cells
Hello again, After four rounds of anti-body therapy nearly everything is coming into normal range but my bone marrow still is not producing e...
Weekly Blood Transfusions
Hello, I was wondering if there was anyone out there having to receive weekly blood transfusions ? I'm a daughter of a man that has advanced ...
Lost, Scared, Confused but Optimistic
What he did not explain nor diagnosed me as having Hughes Syndrome....
“Yay I’m finally out of hospital!!”
After the last post of Bev in hospital basically learning to walk again - she was in rehab for 2 1/2 weeks - and came home this week. She has...
am i being selfish
my little one is 11 days old, spent the first 6 days in hospital i needed 4 blood transfusions after the birth, had her home for 5 days getti...
Can APS come and go, like having lupus flair ups?
I'm being told that because I came off warfarin for a time and didn't have any major clotting issues, that this must mean I don't have APS an...
PSA rising after seemingly effective Hormone Therapy only four months into treatment.
Hello! My father ( 73 ) was diagnosed with stage IV prostate cancer six months ago after having lost a lot of weight and suffering from a lot...
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyConti...
fed up of a range of pains
Hi im 16 and I've experienced a range of pains in many different places for over a year now Around june last year I had a blood count of 5 wh...
Why iron is such an important part of your diet
Anaemia can often develop with CLL, both during Watch and Wait ( haemoglobin falling under 10/100 is one of the triggers for starting treatme...
Hi Everyone Well no more blood transfusions as HB has risen to 100, Platelets have risen to 76, so all looking good. We discussed further tre...
Sad new year 2017
Had a phone conversation with Dad's consultant yesterday. I wanted to clarify in my mind where we actually are with his cll....
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