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so worried I have PF

Hello I’m hoping someone can help as I’m so worried. I started feeling breathless before Christmas and was diagnosed with a chest infection but after 2...

Hello I’m hoping someone can help as I’m so worried. I started feeling breathle...

Bronte007

•1 year ago

19 Replies

Permanent Lung Scarring from Pneumonia

Does anyone on here have experience of permanent lung scarring (in this case caused by flu/bacterial pneumonia)? How long did it take for the scarring to...

Does anyone on here have experience of permanent lung scarring (in this case cau...

Pookyal

•1 year ago

24 Replies

NSIP and diabetes

Anyone who has Non-specific interstitial pneumonia and diabetes? Or find that OFEV effects diabetic blood sugar

Anyone who has Non-specific interstitial pneumonia and diabetes? Or find that OF...

Loveroftwist

•2 years ago

13 Replies

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Hi my mum diagnosed with ip f over 6 years ago. She is 89 quite active till recently, her breathlessness worse do inhalers help?

What options other than oxygen available. Mum has done breathing exercise rehab at local hospital in West Midlands.

What options other than oxygen available. Mum has done breathing exercise rehab ...

Sweetpea731

•2 years ago

4 Replies

Considering pf trails ?

Hi guys since I am in later stages of pulmonary fibrosis 46pc I realise it could be a lot worse,I'm wondering of anyone has had or considered pf trails I'm...

Hi guys since I am in later stages of pulmonary fibrosis 46pc I realise it coul...

Dion50

•2 years ago

8 Replies

Dad has been diagnosed with pulmonary fibrosis on xray alone.

I'm new here. I'm hoping to receive information and support following some upsetting news. My father underwent an xray and heart scan after a test at work...

I'm new here. I'm hoping to receive information and support following some upset...

rachmd11

•2 years ago

12 Replies

Hi guys again 🙂

With my pf I also have rumathoyd arthritis which they said was in my lungs so it caused the pf and I have mctd the morphine I don't like the feeling it gives...

With my pf I also have rumathoyd arthritis which they said was in my lungs so it...

Dion50

•2 years ago

5 Replies

Confused

I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt...

I have pf for the last 6 and half Yr its really confusing me or maybe I'm in den...

Dion50

•2 years ago

15 Replies

IPF

Diagnosed with IPF in Nov 2016. I find that Potters lozenges ( Green pack ) are helpful. Have had 4 breathing tests now. Not on any other medication yet. I run...

Diagnosed with IPF in Nov 2016. I find that Potters lozenges ( Green pack ) are ...

Goto4

•3 years ago

9 Replies

Side effects of prednisone

Hi I am on 5mg maintenance dose or prednisone and have been for 4 years. I am suffering with mood swings feeling high then very low moods. Is this to do with...

Hi I am on 5mg maintenance dose or prednisone and have been for 4 years. I am su...

Bentley23

•3 years ago

15 Replies

A small molecule induces readthrough of cystic fibrosis CFTR nonsense mutations

An experimental drug reported in Nature Communications suggests that a “path is clearly achievable” to treat currently untreatable cases of cystic fibrosis...

An experimental drug reported in Nature Communications suggests that a “path is ...

2greys

•3 years ago

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The cells combating a deadly lung disease.

Single-cell RNA sequencing has revealed a subset of cells that could provide protection from a rare, but severely debilitating and fatal, lung disease. The...

Single-cell RNA sequencing has revealed a subset of cells that could provide pro...

2greys

•3 years ago

1 Reply

Radiotracer effective for detection and assessment of lung fibrosis

Positron emission tomography (PET) using a 68Ga-labeled fibroblast activation protein inhibitor (FAPI) can noninvasively identify and monitor pulmonary...

Positron emission tomography (PET) using a 68Ga-labeled fibroblast activation pr...

2greys

•3 years ago

1 Reply

Microgel coating gives donor cells a boost in reversing Pulmonary Fibrosis

Researchers at the University of Illinois Chicago have shown that even after lung tissue has been damaged, it may be possible to reverse fibrosis and promote...

Researchers at the University of Illinois Chicago have shown that even after lun...

2greys

•3 years ago

Be the first to reply

Antibiotics no help for mysterious lung-scarring disease, large trial finds.

Doctors have hoped that antibiotics could benefit patients with chronic lung diseases, but a new study has found no benefit for patients with life-threatening...

Doctors have hoped that antibiotics could benefit patients with chronic lung dis...

2greys

•3 years ago

2 Replies

Smoking, Oxygen Use Linked to Higher Hospitalization Risk in IPF.

While receiving treatment at specialized centres lowers the risk of hospitalization among patients with idiopathic pulmonary fibrosis (IPF), being a former...

While receiving treatment at specialized centres lowers the risk of hospitalizat...

2greys

•3 years ago

2 Replies

Transforming Lung Cells Critical for Pulmonary Fibrosis.

The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a...

The failure of lung epithelial cells to complete transition from a stem cell-lik...

2greys

•3 years ago

4 Replies

Health outcomes differ between UK and US children with cystic fibrosis.

A new study led by University of Liverpool researchers has confirmed that children with cystic fibrosis (CF) in the US have better lung function than UK...

A new study led by University of Liverpool researchers has confirmed that childr...

2greys

•3 years ago

1 Reply

Multi-drug resistant infection spreading globally among cystic fibrosis patients.

A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread...

A multi-drug resistant infection that can cause life-threatening illness in peop...

2greys

•3 years ago

6 Replies

A modified protein appears to trigger lung fibrosis after environmental exposure.

The triggers and causes of a severe scarring disease of the lungs — idiopathic pulmonary fibrosis, or IPF — remain unclear. Now research published in Science...

The triggers and causes of a severe scarring disease of the lungs — idiopathic p...

2greys

•3 years ago

2 Replies

Another Deadly Disease for Smokers: Pulmonary Fibrosis.

Current and former smokers are at risk for a lung disease called pulmonary fibrosis, but many aren't aware of the threat, the Pulmonary Fibrosis Foundation...

Current and former smokers are at risk for a lung disease called pulmonary fibro...

2greys

•3 years ago

25 Replies

Machine learning comes of age in cystic fibrosis .

Accurately predicting how an individual’s chronic illness is going to progress is critical to delivering better-personalised, precision medicine. Only with...

Accurately predicting how an individual’s chronic illness is going to progress i...

2greys

•3 years ago

Be the first to reply

BOC oxygen supplier

Merry Christmas to you all. I'm on oxygen 24/7 I have a concentrator at home and use canisters when out. I also use the canisters to give me an extra boost to...

Merry Christmas to you all. I'm on oxygen 24/7 I have a concentrator at home and...

cazza34

•3 years ago

14 Replies

Medication Enquiry

Medication Enquiry Hi, would be interested to know if anybody else is on 300mg of soft capsules nintedanib? If so how are you managing?, many thanks

Medication Enquiry Hi, would be interested to know if anybody else is on 30...

Wolverton

•3 years ago

4 Replies

Landmark clinical trial shows effectiveness of oral antibiotics in treating cystic fibrosis condition.

A major national study led by experts from Nottingham and Bristol has found that oral antibiotics are just as effective as intravenous antibiotics in killing a...

A major national study led by experts from Nottingham and Bristol has found that...

2greys

•4 years ago

3 Replies

New treatments for deadly lung disease could be revealed by 3D modeling.

A 3D bioengineered model of lung tissue built by University of Michigan researchers is poking holes in decades worth of flat, Petri dish observations into how...

A 3D bioengineered model of lung tissue built by University of Michigan research...

2greys

•4 years ago

Be the first to reply

Difficult times

I have combined emphysema and pulmonary fribosis and have recently been turned down for a lung transplant due to having a heart condition....I'm 57 and feel...

I have combined emphysema and pulmonary fribosis and have recently been turned d...

Vetty1234

•4 years ago

13 Replies

The search for a gene therapy to reverse pulmonary fibrosis associated with ageing.

Idiopathic pulmonary fibrosis is a potentially lethal disease for which there is currently no cure and that is associated with certain mutations or advanced...

Idiopathic pulmonary fibrosis is a potentially lethal disease for which there is...

2greys

•4 years ago

Be the first to reply

Pulmonary fibrosis treatment shows proof of principle.

A pre-clinical study led by scientists at Cincinnati Children's demonstrates that in mice the drug barasertib reverses the activation of fibroblasts that cause...

A pre-clinical study led by scientists at Cincinnati Children's demonstrates tha...

2greys

•4 years ago

Be the first to reply

Strange Referral, worried about delays on lung test....

My elderly dad was being looked after by Kingston Hospital, and was due to have his lung oxygen capacity test in Nov. The have now referred him to The...

My elderly dad was being looked after by Kingston Hospital, and was due to have ...

lookingafterdad

•4 years ago

12 Replies

Write a post or ask a question

Posts - Lung Conditions Community Forum | HealthUnlocked

Lung Conditions Community Forum

Pulmonary Fibrosis posts

so worried I have PF

Permanent Lung Scarring from Pneumonia

NSIP and diabetes

Hi my mum diagnosed with ip f over 6 years ago. She is 89 quite active till recently, her breathlessness worse do inhalers help?

Considering pf trails ?

Dad has been diagnosed with pulmonary fibrosis on xray alone.

Hi guys again 🙂

Confused

IPF

Side effects of prednisone

A small molecule induces readthrough of cystic fibrosis CFTR nonsense mutations

The cells combating a deadly lung disease.

Radiotracer effective for detection and assessment of lung fibrosis

Microgel coating gives donor cells a boost in reversing Pulmonary Fibrosis

Antibiotics no help for mysterious lung-scarring disease, large trial finds.

Smoking, Oxygen Use Linked to Higher Hospitalization Risk in IPF.

Transforming Lung Cells Critical for Pulmonary Fibrosis.

Health outcomes differ between UK and US children with cystic fibrosis.

Multi-drug resistant infection spreading globally among cystic fibrosis patients.

A modified protein appears to trigger lung fibrosis after environmental exposure.

Another Deadly Disease for Smokers: Pulmonary Fibrosis.

Machine learning comes of age in cystic fibrosis .

BOC oxygen supplier

Medication Enquiry

Landmark clinical trial shows effectiveness of oral antibiotics in treating cystic fibrosis condition.

New treatments for deadly lung disease could be revealed by 3D modeling.

Difficult times

The search for a gene therapy to reverse pulmonary fibrosis associated with ageing.

Pulmonary fibrosis treatment shows proof of principle.

Strange Referral, worried about delays on lung test....

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