Acetylcysteine capsules: Hi all, this... - Lung Conditions C...

Lung Conditions Community Forum

55,064 members65,854 posts

Acetylcysteine capsules

searching4answers profile image
6 Replies

Hi all, this is only my second post. A few weeks ago my dad was diagnosed with IPF and has been taking Acetylcysteine for about 5 weeks now. Yesterday he saw the consultant and his breathing test showed an improvement from 2litres to 2.5l. He's on oxygen for a while each morning and his sats were 100%.

I just wanted to give others out there that might be newly diagnosed some hope that in some people this medication works really well.

Written by
searching4answers profile image
searching4answers
To view profiles and participate in discussions please or .
Read more about...
6 Replies

I have been on this for 4 weeks too and although I have no measurements to prove anything I do feel better. Hopefully it can at least slow down the progress of IPF if given early enough. Please send best wishes to your dad. :-)

searching4answers profile image
searching4answers in reply to

Yeah, I really hope they work for you as well as my dad. He takes 600mg three times per day. It's interesting that TADAW mentioned about her husband's stomach though because my dad has been complaining of heartburn over the last two or three weeks.

in reply to searching4answers

I was already on Omeprazole because I have acid reflux before I started taking the Acetylcysteine, so maybe that is keeping the heartburn at bay. Perhaps that may be worth discussing for your Dad too?

My husband took this for a while but it started to upset his stomach - he did suffer with ulcers. It might be something to watch for. BUT I am putting him back having read your post and will just probably do it in short bursts - say 3 weeks on and 1 week off and see if that helps. Thanks for reminding me! TAD xx

in reply to

I started on 1 per day for 1 week, then 2 per day for 1 week, then 3 per day thereafter. The consultant did say that if I had any problems tolerating the higher dose then just to revert to the previous dose. Don't know if this advice was given to your husband but if not it may be worth discussing with his consultant maybe? Best wishes to you & your husband too! :-)

searching4answers profile image
searching4answers in reply to

My dad has been complaining of heartburn for the last two or three weeks, to deal with it he's been letting a small glass of caffeine free diet coke go flat for an hour or so then drinking it and it seems to be helping ease it. That was something recommended to me when I was pregnant and it worked back then too. I hope this helps.

You may also like...

CARBOCISTEINE SYRUP VS CAPSULES

syrup, my doctor has suggested I wait a couple of weeks then try Carbosisteine capsules instead....

When the drugs don’t work

managing to keep well and warm. My Dad has been diagnosed with COPD for some time now, but our GP...

I might just shoot that seagull!

we say. His mother left him weeks ago And he's old enough to fly And forage for some food to...

Bronchiectasis update

off after our visit to his consultant who said his condition was mild and his doctor would manage...

Classic 1989 Jaguar XJS Gone with the Wind

when he was diagnosed with motor neurone disease, for when we couldn’t ride our motorbikes. His...