In the midst of our great country so many have no medical care. I am afraid to say that I have become one of them. I am saddened by the delay of helping me to get treatment. As some of you know I was diagnosed in Aug 2012. Took me until Dec. 2012 to see a Dr for my Bronchiectasis. It literally took them 3 more months to decide if they were going to treat me for MAC. The same day we were able to get the drug companies to help me pay for my medicine for MAC treatment I found out that I am Jaundice and may have Cirrhosis of the Liver. I use a state ran facility since I have no health benefits. In my case each time they refer me they put my file in front of a board and they determine if they will help me or not. Well they don't send you a denial they just don't acknowledge you and you have to determine that you are not getting treatment. In my case it has been about 3 weeks and when I call they still say they received no referral and my GP still says they sent it. ( you know my problem). I now have dark circles around my eyes, severe joint paint...pain in my stomach and just plain tired like I want to sleep my life away. I am tired of trying to seek help and about ready to give up. I am tired of begging for them to help me. So now it is time for me to try and treat myself. I am still using my Neb 2 times a day..which salt water never runs out. Albuterol until it runs out and my Advair until it runs out. I am not taking any other meds as they do not give me to much of anything. What ever I get has to be free because I can not afford to pay for meds. I have 4 children and I am 49 years old. I probably will never get to see the things I only dream for with my children. I am tired of fighting the system. People can die from just waiting to be noticed and that you are tired of fighting. It is so sad that so many people have no insurance or can not get it. My husband makes to much for state help but yet there are 6 of us and disability always denies you. I am at my ropes end and can not seem to dig myself out.
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