Hi I am new to COPD I came out of hospital following a chest infection and was put on oxygen 2% for 16 hours. I have been told nothing the community nurses visited for a few days but apart from the health and safety aspect repeated reminders about the dangers of smoking, candles and cooking every visit they told me nothing any questions and I was told it would be sorted in clinic...after 6 weeks I recieved a clinic appointment but there was very little time for my questions to be answered whilst they were doing tests and blood gasses. and I was fobbed off into a waiting ambulance with questions unanswered. I was told my oxygen could be dropped to 1% I understand that this is good news but no idea why. What is the best time to use the oxygen in the 16 hours? I use it at night and during the day if I am active. I am finding it very difficult to manage the stairs in the evenings and night and it is much worse since they lowered it, somedays I am loath to go to bed at night and if it were not so cold during the snow would have slept in the chair rather than go through the ordeal of trying to mount the stairs, Some days are worse than others my bathroom is upstairs so I am up and down a number of times throughout the day for the toilet and to rest. I also get tingling pins and needles and cramp in my hands and feet in the evening when sitting watching tv. I have Sjogrens and Osteoporosis my mouth and nasal passages get very dry and inflamed
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