There seems to be far too many people who lack the support they need for the state of their health. I was describing this site and the community to my Community Matron her advice is for anyone who feels they're lacking the support that their state of health needs is to ask/insist on a referral to a community matron who will soon sort things out.
My name was put forward by the respiratory clinic so perhaps that's a good starting point..
My matron is wonderful - in addition to professional excellence she brings warmth friendship and understanding. Between her and the love and care of my wife I could not be in better hands. Good luck