I care for my mum who has copd, who has been in hospital twice in the last two months with exacerbations. The last time she was admitted, she acquired pneumonia from the ward and stayed in there for two weeks, on oxygen most of the time.
She was first diagnosed two and a half years ago after another bout of pneumonia.
Since that first diagnosis and apart from being an in patient, she has never seen a consultant. Each out patient appointment she has had has been cancelled by the hospital, it has now been moved to 6th March, at this rate she will be dead by then as she is struggling again now. She has not even been assessed for home oxygen.
We don't know what stage she is but I suspect stage 4, but it just seems she is discharged each time and abandoned.
She can't even get dressed without taking a break because she is out of puff.
She has no appetite and no life, it seems she is wilting before my eyes and I am helpless to do anything.
Is this the standard of care we should expect and I am clearly unreasonable in expecting more?
Aaarrrrgggghhh, ok rant over