I would like to say a heartfelt 'thankyou' to each and everyone of you who sent a message of condolence when my dad passed away.
Special thanks to Stitch for letting you all know for me and to amagran for being such a good friend and listener.
I returned to work today and it was great getting back to 'normaility' if there is such a thing. I had cards from customers/patients who I know so little about, just from coming in once a month to collect ther prescriptions. People are so kind and it is often these little gestures that get you.
I truly hope that you all keep as well and healthy as you can be and know that I will always think of you all from time to time. Coming on here was my salvation at a time when I thought things couldn't get any worse. But they did on the 30th December. But, you know what? I made a promise to my dad that when the time was right I would take on the 'medical world' and seek justice for him. There are a number of things that need changing and putting right with the ultimate focus being on patient care, starting from the very beginning.
My dads' consultant has asked me to be on a 'committee' that she is setting up to help those like dad and their families who are going through what we have been through and offer support and help wherever possible. I gladly accepted, anything I can do to help and if only a small difference is made then it will be worth it.
Idiopathic Pulmonary Fibrosis watch out......................now I know about you I'm coming after you and I will not rest until I get justice for dad.
Take care everyone
xxxxxxxxxxxx
Written by
tanyamarie
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you go girl, and just let me know if you need any input, am not only right behind you, am in front and holding you up too.xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Fantastic - it's the sort of thing I'd be keen on doing too, but at the moment life is just too busy looking after my husband. I have found the lack of awareness and difficulty getting a diagnosis so frustrating (even when doctors were told his father had IPF, and his cousin.....and I queried the COPD diagnosis as I had nursed my dad with that and his symptoms were entirely different). It all needs a bit of joined up thinking, and some proper support. Go girl! let us know if there is anything we can do to help
you've got IPF running scared tanyamarie, I know I would be if you were after me with that determination. You'll get justice for your Dad and it'll help us too. Thank's
Dear Tanya, Your letter to your Dad made me cry,and I know that he will always be proud of you,All the very best in your fight against IPF and Peace and Love in your days to come,hugs to you and Mum, Carol xxx
im so glad there are people like you in this world , so proud and inspired by your deep feelings of passion and determination , i wish you every bit of support and fighting spirit we are all here for you if you need us , good luck , kim.
From someone who has IPF I would just like to say "thank you"! You really do seem to be a very special person and I wish you well in everything you do. If there is any way those of us with IPF can help the "fight" do let us know. XXX
that is exactly what's needed .... someone who knows, cares and can do intelligent battle. At the same time, make sure it doesn't take over too much of your own life, as the best heroes are those fully-rounded 'normal' ones . all the very best to your Dad's best legacy - you. xx
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grab IPF's by the you-know-whats and shake 'em 
I am a wife of a COPD sufferer
Update - I saw rheumologist today 
AM I FINALLY GETTING THERE DUE TO MY OWN PIG HEADEDNESS AND A REFUSAL TO ‘TAKE NO FOR AN ANSWER’
A long wait but finally got there I think
Did I just imagine it?
