Happy new year to everyone.
I wont bore regular readers with my history, just say Ex TB-Pneumonia/Broken Ribs/ Chronic Pain Ribs/Failed Surgery=Pneumothorax /Emphysema/ COPD/ Pleurisy /Double Pneumonia, Hospital stay 1 mth. Loads of tests since, outlook not good, disease gone too far to treat with Lung Reduction , not suitable for lung transplant as terribly unfit due to right side constant pain, and so on.Terribly low LF, very low indeed, think 25% and go lower, for a full rundown Im sure you can look at my recent posts should you be very bored
I saw my regular area Lung Specialist on Dec 12, who had been very very down beat about any surgery options, and that probably all that can be done now is to make my life as good as it can be for the next 5 years. (More and more results point to only a few life years left.)
However, after some apparently worrying CRT test results, my specialist said he had got in touch with the London Doctor and had arranged for a 'Fast ' appointment with him.
This was in the week between Christmas and the N Year,
The referral Letter I assume went out immediately,(I got a copy on the 29th) must have been the 27th or 28th, and I assumed it would be the usual 6 months wait to see a specialist, as it has always been down here on the coast.
I was telephoned on Wednesday,1st day back after NY breaks, and told I had an emergency appointment for next week.
Im due to have a repeat set of LF tests, CRT test, and then speak to a Dr N Hopkinson at Royal Brompton hospital.
Does anyone know anything about this Specialist? Dr N Hopkinson .
Also the hospital? is it a friendly place? has anyone been there? has anyone seen this Doc? Will I struggle to get from Victoria to the Hospital. Has anyone traveled up on the Brighton=> London Victoria route?
My Appointment is for 10.45, Im taking a train that arrives at Victoria at 10am, giving me 45 mins to push my walker up the steps and find a cab, and then get there, is this enough?
Is this less than a week wait for appointment the usual speed for a referral to this sort of thing? Im winding myself up all day, and my dear wife, saying its so fast there must be something horrid, and then saying its really fast, maybe because I fill one of their test specs, and so on, all day long.
Im relatively young, and to hear from my own area specialist that there was no chance of any surgery as I had gone too far, and then get this out of the blue, It makes so many thoughts go round my head.
Amway, forgive my usual ramble, you guys and my wife are the only real outlet we have for all my worries, and I try and keep happy and hopeful for my wife's sake.
Main worries are whats the transport like, do I need to leave much longer? And does anyone know the Doc? Any advice to make it an easier day?
Thanks in advance