After a long wait I finally got my Complete Spirometry results, along with a load of other results.
To be quite honest I wish I hadnt now, but Im hoping Im looking at the wrong bits.
Ill list the pertinent numbers from these results-
FEV1(L) PRED-3.83, OBSERVED-0.88 OBS PRE % PRED- 22.89
FVC(L) PRED-4.71, OBSERVED 2.00, OBS PRE % PRED - 42.46
PEF -L/M- PRED 546, OBS PRE 183.6 OBS PRE % PRED - 33.64
Note- Expiratory time was unsatisfactory due to SOB, therefore fvc is underestimated
Ive been using- Severity of COPD (GOLD scale) as a guide @-
FEV1 % predicted
Mild (GOLD 1) =80
Moderate (GOLD 2) 50–79
Severe (GOLD 3) 30–49
Very severe (GOLD 4) <30 or chronic respiratory failure symptoms
BMI is 25
Prognosis in COPD The Bode Index is 9. Patients with this score have a 52 month mortality of approximately 80%.
So you can see why I am panicking.
I had TB 10 yrs ago, Emphysema since 2005, Severe COPD diagnosed past 4 years or so. Had a failed surgery on broken badly mended ribs /nerves, where a slip caused a massive pneumo thorax, stopping any further surgery on the chronic pain, and screwing up my lungs.
I have Severe COPD, with a recent community acquired severe double pneumonia, was in hospital for 4 weeks.
I have been referred to a guy called - Dr N Hopkinson at Royal Brompton, with my specialist asking him if there s any point in lung reduction therapy, or any other surgery or therapy.
He has mentioned that because of the recent Pneumonia (New Upper Left upper lobe consolidation) and the spread of emphysema from CT scan, in both lungs, lower sections , there wasnt much chance of any surgery. My understanding is that of the 5 lobes/sections on my lungs I only have 2 that are functioning better than the other 3. And as its top and bottom, most surgeries./procedures are negated??
He has explained I cant do pulmonary Rehab due to long term chronic pain in my right intercostal / ribs area, inhibiting twisting,reaching, bending etc.
Im nearly 50, DONT SMOKE OR DRINK, and want to improve my way of life, as medicine seems to have abandoned me.
Despite these results, My Shuttle Walk results came back at 89%, which is 1% too high to warrant oxygen therapy. Then I mention well maybe the reading should have been taken during or immediately after the walk, not 15 mins later 'Sorry was on the phone'.
I recuperate rather well, thankfully, I do use my own Bl/Ox meter, and go down to 7os very quickly, forcing me to stop, but then I am back up to 89-90 relatively quickly.
But, as I was above 89 on the 'Test' I dont qualify for oxygen. Disregarding this rubbish I bought my own oxygen machine, which I use daily for 30 minutes, and heck it does work, without I can only walk 5-10 mtrs unaided, after using I can make 12-15mts
I have a treadmill at home, and am managing to do 7 minutes at 1km/h each day. I am using my Bl/Ox meter to a level of 70, then I stop. I also go out shopping and walking round Asda twice a week (A long walk)
What does surprise me is that if I use a trolley (Shopping), or hold the hand-grips (treadmill, ) I can go on for ages, but the second I let go, Im beaten in 10 meters.
I also monitor my Peak Flow Daily (Current record is 165-180)
So, Im trying to keep fit, and monitoring everything, and trying my best. Is there anything else I could be doing?
As always, many thanks for reading, and I welcome everyone's advice as to what else I could be doing, also feedback on the severity of my illness based on basic numbers. I have 5 sheets and 3 graphs as well if any more pertinent information is needed to enable words of advice
Take care, and Happy Christmas