I had a heart attack a year last November. I was diagnosed with Sarcoidosis last July. I have just seen my doctor for a routine visit about my heart but on the computor screen there was the results of a CT scan I had three weeks ago. It said I had fibrosis in my upper lobes. I asked him about this and he said said Iwould have to speak to my chest doctor about it. I am worried now that I have pulmonary fibrosis and not sarcoidosis. I am on Prednisolone (40mg) per day but am still breathless and on oxygen.
I know pred isno real help for fibrosis. Does anyone have any knowledge of upper lobe fibrosis?