I am thinking of doing this but a little scared. I would be interested to know if anyone has tried this and what was the outcome.
At the moment I am happy to try anything but I don't want to jeopardise my health any more. I just want to be able to breath.
I have just spoken to my husband who has had a clinical trial for prostate problems. Different field but the idea was the same. His impressions were good. He said he was looked after, personal treatment and a free lunch. His health certainly wasn't jeopardised.
Really nothing to worry about. Think it would make me feel special.
One point, ask if you can have a feedback.
All the best from Annie80.
Hi, I took part in a clinical trial for copd a few years ago for Glaxo Smith Kline at Wythenshawe Hospital where they have a dedicated medicines evaluation unit. No drugs involved, just breathing tests conducted on computerised machinery. It was a two year trial and involved, from memory, 7 visits. Some were about 4 hours, others were about 2 hours. Again, from memory, it paid about £900 so is well worth the trouble if you have the time and you are also helping research into copd which is badly needed. I must say,though, I wouldn't have taken part in any trials that involved drugs! Hope this helps! Libby x
I did a trial many years ago with drugs involved, I was much fitter then. No one knew if they had a placebo or not but I was not well after a couple of months and pulled out just before Christmas and I had a rotten Christmas I think I had the real thing not a placebo and would never do it again with drugs. Saying that I would if drugs were not involved.
polly xx
Have taken part in two drug trials. Like pollyjj, I did not know if I had the drug or a placebo.
First one was fantastic and when it was over, asked if I could have some more of that. Doc said - it could have been placebo, in which case, I replied, could I have a prescription for the placebo. It turned out to the drug and it was fantastic until I outgrew / outlunged it.
Second one was not so good, but, like all of these trials, you can stop the moment you feel uncomfortable or that you are getting worse. I reckon I had placebo and after a short while asked to come off trial as felt I was going backwards. That was not a problem to anyone and I stopped there and then. I was also monitored for a short while to make sure I got back on track.
My experience is that the health of the patient / triallist is paramount and that they would do nothing to jeopardise that. If I was asked to trial another drug, I would willingly do so and my doc knows that.
I applied this year for a trial with Quintiles in London for a new COPD drug. After a long winded process over 3 months, phone calls back and fro, I was not accepted for an assessment due my current medication. Shame, I was looking forward to it!
Do let us know if you are any more successful.
I have been involved in two trials, one was for a healing for the arteries in your heart and the second which I am still on is for Statins. On both of them I was well looked after and felt certain that my interests were paramount. Both of the trials were run by the NHS so I was not paid other than expenses.
I was nominated for both of them by my GP as I had a bypass 3 years ago. The first one I was told I had been given the drug and I have been told that the placebo and the drug are alternated every 90 tablets on the current trial for statins.
regards
David.
hi, ive been asked if i will do a drugs trial. T he letter came from my local hospital through my gp. Its for an inhaler that combines the drugs and its taken once a day. The trial is for 12 months and involves 9 visits to the hospital for 2 hours at a time. I looked up the trial on the internet and read all the things theyve done so far and i can ask for more information before i decide which i`m going to do. I can also pull out at anytime. This trial is for moderate to severe copd as im in the severe group i am considering doing it if it doesnt help me maybe it will help things in the future, its nhs so theres no fee only expenses . If youve been given a name for the trial or a number look it up and discuss it at least with your gp before deciding to go ahead. good luck
sandra
Thank you all for your responses, here is the link I was sent by a friend: quintilesclinicaltrials.co....
It's always good to hear other peoples views, I don't really get involved with group discussion but when I came across this group yesterday I read every single thread and really enjoyed it I also enjoyed the banter between everyone.
Anyway once again thank you all for the messages.
Hi I have been on two clinical trails this year - at my local hospital I was treated very well and they sent a taxi for me both ways - I did a lot of tests like breathing walking muscle weakness bloods ect - they basically gave me a good MOT although most interested in why some peoples artries may harden with copd and others don't am am due to go back in January for a full MRI Scan. I felt if was a good idea as anything that may one day benefit people with this condition was a good thing. Personally it was good as they spent a lot longer on tests than your local GP does and they then send all this information to them. Any worries discuss with your GP and Good luck BB
has anyone here undergone Lung Surgery for cancer?
Gone 
Lung transplant clinic appointment 
Celebrating -nasties have gone!
First visit to restpertery clinic 
