Went to see my consultant yesterday. My breathing has been getting worse over the last six weeks. On my last visit he started to reduce my Pred by 5mg every two weeks so I am now on 40mg. I had an xray and lung funtion test and he said that they are both fine and no worse than my last xray and test so he cannot understand why my breathing is worse.
It was like I was lying or something. I said to him that I was glad my tests were ok but I know how I feel and my sats go down to 82/84 when I walk or move around the house and I have to use my oxygen to get them back up. After going back and forth for a while he decided to send me for a CT scan to see if there is something else going on. So that will be another six weeks until i see him again and another six weeks of poor breathing.
I hate not being able to breath properly and doing anything makes me out of breath so I end up doing nothing and just watch the TV. Lets hope the scan shows the reason for my breathing problem so something can be done.