pain

[rosie75]

been to see asthma nurse today as the pain in my right lung is concerning me

my peak flow was 250 i was told that was expected due to bronchiectas

i was not prescribed anything as i am waiting to see an immunoligist

does anyone else have a lot of pain with bronchi?

[Bronch1noGO]

Hi,

I've got Bronchiectasis and I get recurring pain in my left lung on inhalation this happens when an infection is brewing - have you been diagnosed with Bronchiectasis, are you on antibiotics? I'd see my GP just to be on the safe side in case an infection is lurking about. There's a great site called Bronchiectasis R Us which is a mine of information. Pop over and register they're a great bunch on there.

Take care

Karen

X

[maxer in reply to Bronch1noGO]

I am so glad to hear others have pain with Bronch. My specialist said the lungs have no nerve endings so you dont get pain. So what am I feeling ?

[rosie75]

hi karen

yes i have been diagnosed,i take azythromicin{they give me thrush} i also get pain on inhalation i have tried to get on broncs r us its very difficult so i gave up

i think im just feeling sorry for my self as im about to lose my job!

x

[Bronch1noGO]

Rosie I know it's difficult sometimes to access Bronch R Us but believe me it's most certainly the place to go, there are loads of people on there who have been diagnosed for years, I myself have only been diagnosed for 14 months so like you I also find things hard and often feel down in the dumps. I can only take Doxycycline (so far so good) as I'm allegic to so many anti b's, I'm also Astmatic with moderate COPD.

Sorry about the job I haven't worked for 6 yrs and my hubby was made redundant this June and his age is against him getting another. I know things are hard but try to be positive, I usually give myself a little talking to (it works ).

Please keep trying to join us on BRUS it'll definately be worth the wait

Take care

Karen

X

[Hidden]

Mine doesn't give me pain Rosie but other people on the BRUS site do complain of it. Drs will tell you it's not possible cos the lungs have no pain receptors, but you can have spasms in the tiny muscles you don't usually use (from all the coughing), or there is something called costochondritis

love, FF x

[alanjudy]

I get pain even tho I know that you can't get pain in your lungs. However my consultant told me that it is possible to feel pain - it's in the surrounding tissue/ muscle and is usually an indication of infection. I notice that mine gets worse when there is infection. Some days I can't wear a bra as it hurts - bras in different sizes and softness!

Judith

[janie62]

Hi Rosie i too have bronc try this to see can u access bronc. site good luck pet janie x

bronchiectasis.info/forum/f...

[janie62]

i just tried above link and it did work xx

[bluemagic]

Hi all,

I get pain with bronchiectasis and have been told it's pleuritic pain as in pleurisy. This is such a deep, sometimes sharp pain I can't believe anyone could dismiss it as if its imaginary! Haven't worn a bra for years but find those vests with support do the job and help with the pain too if not too tight. Hope this helps.

It's good to hear from other bronchiectasis sufferers too. Does anyone else have to take gentamicin and colomycin through the nebuliser? Mega thrush!

[Hidden]

Good point stitch, never thought of the connective stuff

Tbh I think some drs say these things just to shut pts up!

FF x

[Hidden]

I nebulise colomycin but not gent. Also take oral azithromycin 3 x week. Rarely get thrush but I take actimel everyday, think that helps a lot

The bronchiectasis.info site is a wonderful source of information and support specifically for bronchs. Many of the members have had bronch for decades, if not since infancy, so they know a thing or two! Yes the connection is occasionally erratic, but it's usually fixed quickly. The founders run it all in their own time & expense and it really is an inspirational site. If you have bronchiectasis you should definitely be using it.

I tend to pop on and off there and here cos there is good info and support here too, and both sites have lots of lovely people!

FF x

[rosie75]

hi everyone

thanks for your resonses,ive just been told i have lost my job i am feeling sooo down!!

but its good to know i am not alone, only you guys know what its like

i think i will raise a glass or two tonight!

cheers

[bluemagic]

Hi,

Thanks fairyfootsteps for the info about the website. Will definitely look it up. All info is welcome!

[thatcham1939]

Hi i have Bronchietasis, i have had pain in my left lung at times,in fact my specialist asked me if i had any pain, i do hope you get sorted out thinking of you