Quite a while ago, I was at my wits end because my husband was slowly dying from COPD and Bronchiectasis. He had been in hospital three times with pneumonia in 8 months and nearly died in hospital. He had completely given up.
Whilst he was in hospital I was chasing up my appeals for the Attendance Allowance, asking why we did not have a Community Matron, and a heck of a lot more things that no-one was helping us with. My husband was so down but very angry and domineering, I had to do everything for him I actually felt like walking out as I had my own illness and had lost 2.1/2 stone without dieting.
I wrote to my MP and within a week we had been granted Attendance Allowance, received our Blue Badge, we had a visit from the Community Matron who has now ut him on her books, the physio was requested to come to the house as my husband could not get to the Rehab classes.
After months of stress, emails and asking why no-one was helping us, and getting help and information from this website and such lovely comments telling me to keep my chin up everything suddenly fell into place. We have got a wheelchair, which we were going to buy and had on order, but the Matron said no, you should not have to by your own equipment and organised one for us. We also got home oxygen and a nebuliser to keep.
Two weeks ago, it was our 45th wedding anniversary, we had not left the house since January 2012 apart from hospital visits and admissions. We got our sons and their family together, booked a table at a restaurant and went out for a meal. We took the wheelchair and oxygen with us, my sons helped with the wheelchair and we had great time, my husband said he had never felt so relaxed for a long time.
It does not end there, at the weekend my husband said he felt like a drive out, we took the wheelchair and he said, shall we go out for our dinner. We went to a lovely little pub, and had a meal. I cannot begin to tell you how wonderful this was, I had got my husband back and we were once again a couple instead of being patient and carer. Having all this help has made my husband realise it is not the end of his life as he was thinking but the beginning of his new life with this condition and he has to learn to live with it.
The matron is going to organise a 'care pack' so he has antibiotics on hand and is given us our 'flu jabs today to save us having to go to the doctors.
It just goes to show what outside help can do for you, and it is terrible that I have had to fight every step of the way to get it. The GP could have helped more instead of my having to go on the websites looking for answers.