i went to see the specailist yesterday absolute waste of time

my body wont take much more i went to see the specailist yesterday absolute waste of time im being told by the hospitalit copd yet i have to wait once again for a blood test and lung function test and she wonders why im depressed and now am tablets for it nbut not sure i trust myself with all these tablets in the house surley 5 months is a long time to be left struggling to breath just walking up the stairs i feel like giving in to my mood

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  • Hi Madmarc - I'm new to the site,( I'm my husband's carer, he has fibrosis. ). Please don't give in - phone the BLF Helpline in the morning, see if they can help - we were getting no support until I spoke to them and they suggested we should ask for Pulmonary Rehab.I found a number for Pulm. Rehab locally on the internet and phoned to talk to them. They sent a Respiratory Nurse to see us, no miracle cures but practical advice, like washing your mouth our after using inhalers etc. to avoid mouth ulcers/thrush etc. and my OH is having assessment for oxygen next week as a result of the nurse's visit.I do feel for you - and no, I don't suppose I can really imagine what it is like for you. Just hang in there, I'm sure others will be adding their comments & support soon, and be much more help to you. I'm just going to bed and saw your post, and felt I had to get in touch in case you are still online..

    Gill

  • So sorry madmarc. Don't do anything daft though I do understand how you feel. Been there got the t-shirt etc. I'm on anti-depressants too and I gave in to temptation a few years ago. The result? I slept for 2 days and woke up. OMG!

    Everyone is here for you love - promise you will come in whenever you need to - you will always get support and care here. Bev xx

  • I had to wait a year before I finally managed to get a proper lung function test. In the end I changed my doctor and he got things moving. Before that there were some days i was gasping for breath ever few minutes. I did get a bit miserable to begin with then got annoyed and decided to get something done about it. If you have a good doctor you should tell them how it is affecting you emotionally and maybe he can hurry the lung function appointments along a bit. Keep our chin up though.

  • Hi Marc

    We all understand and are here for you and each other. Marilyn XX

  • thank u all so much it means a lot to me every one at home just follows me around asking if im ok every two minutes its driving me mad i no they only trying to help but i have never had any help off anyone im asingle mum to 3 and always done for my self does any one no what alpha 1 is as the specailist mentioned a lood test for it that i have to go for

  • Hi madmarc

    As far as I understand it alpha 1 is genetic but it's quite rare. So I wouldn't worry too much about. It sounds like your specialist is just making sure you haven't got the gene.

    Hope this helps x

  • my mum had it and her mum also had it that y i ask

  • HELLO,I KNOW WHAT YOUR GOPING THROUGH, I WAS LIKE THAT 6 TEARS AGO WHEN THEY DIAGNOSED ME WITH COPD, BUT IT WILL GET BETTER. WHAT I DID I WENT TO SEE MY MP,EXPLAINED IT ALL TO HER AND ITS SURPRISING WHAT PUSH THEY HAVE TO HELP YOU. YOU MUST NOT GIVE IN, THERE IS LIGHT AT THE END OF THE TUNNEL, PLEASE BELIEVE ME.

    BEST REGARDS

    JOHN

  • Took me a yr and half to get anyone to listen and believe what I'm telling them, still struggling now.. Was really depressed with it all last yr to the point of wanting to take a bunch of tablets but, I got through it and so will you chick.. Keep fighting and don't take no for an answer..

  • Hi Madmarc,

    I'm so sorry that you're feeling so rough, I think we can all relate to that.

    Please don't give up or do anything silly, there are a lot of people who care about you - least of all your kids & everyone on this site.

    Don't hesitate to chew my ear off if you feel the need to have a rant or let off steam anytime.

    Chin up, don't let the buggers grind you down.

    Take care

    Dave xxx

  • hi dave thanks for the messagei have been to doctors today and ha now gibn me anti deprsents and the offer of a counceller like i told him i dont need on e i just need some answers like for some oto tell me what is actually wrong with me i know what it is i looked after my mother who had the same i just need a diagnosis so i can get the releent help

  • hi ,can you think what has actually made you feel like you do ? if you can then try and address that first ,i have been very low it was due to my medication i still feel really low sometimes but i look at my family and see how happy they all are then i start to find out what i want as i have 5 children and never had time to think about myself and what i want .please try to find yourself what you want and what you want to do make yourself happy try not to take anti depressents as that i feel only helps short term .mine was statins that brought how i feel ,good luck madmarc do what you want to do

  • hi ,can you think what has actually made you feel like you do ? if you can then try and address that first ,i have been very low it was due to my medication i still feel really low sometimes but i look at my family and see how happy they all are then i start to find out what i want as i have 5 children and never had time to think about myself and what i want .please try to find yourself what you want and what you want to do make yourself happy try not to take anti depressents as that i feel only helps short term .mine was statins that brought how i feel ,good luck madmarc do what you want to do

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