I've actually managed to get out and about a few times with the portable LOX (liquid Oxygen) flask! This is after being hospitalised last month with pneumonia, it was a good two weeks before I felt able to venture out at all. The first time was just walking around the block with a lot of rests with one of the heavier first cylinders I was given strapped in a shopping trolley which was hard work but I felt triumphant at the achievement.
The next was with the lighter LOX flask but still in the trolley. I bussed to ASDA and wandered around for a lot longer but the unit iced up within the trolley as I was leaving and the flow stopped, I was straight home in a taxi but it was a tad alarming. Glad I had company. Obvious problem but I hadn't thought of it, no o2 in the trolley in future! I've been back to ASDA since with it on my back in the bag and that was fine, bit of icing up but no interruption in delivery. Wasn't as heavy as I expected either but I knew when I had to stop shopping. I'm on 4 lpm continuous when ambulatory, the flask should last 3 hours the book says. Yesterday I walked to the nearby barbers for a much needed haircut and beard trim which has made me feel tons better.
I find I don't need the 02 as badly in the early morning which is good. In general I feel less 'in bondage' to it than I did. Couldn't even get out of a chair without it at first.
The sleep saturation test wasn't any use as my sleep is so fragmented, they will do another abg in 6 weeks they say.
A Respiratory nurse comes round every week to do Pulmonary Rehab exercises with me for a while as I was deemed too ill to attend sessions. This also seems to be going well.