IPF Week - 23-29 September BLF Leadi... - Lung Conditions C...

Lung Conditions Community Forum

55,057 members65,846 posts

IPF Week - 23-29 September BLF Leading the Fight Against IPF

BevWears profile image
10 Replies

Do you or someone you know have IPF (idiopathic pulmonary fibrosis)? You may like to add a date to your diary for a meeting on IPF being organised by the BLF North Region in Leeds on 26 September, 12.30-4.30pm, during World IPF Week. This meeting will be chaired by North Regional Committee Chairman, Professor David Fishwick and the programme will include experts in IPF, information on research and support available through the BLF.

The day is aimed at people who have, or care for someone with, IPF and there will also be a limited number of places available for healthcare professionals wanting to learn more about the disease.

If you would like to receive further information about the event, please email me on bev.wears@blf.org.uk.

Written by
BevWears profile image
BevWears
To view profiles and participate in discussions please or .
10 Replies
Posative profile image
Posative

hi i have been diagnosed with IPF as i live in birmingham it would be difficult to get to Leeds for meeting on 26th sep would i be able to get a copy of the contents of meeting from anywere as i would be very interested in reading it .

regards julia.

BevWears profile image
BevWears in reply to Posative

Hi Julia

Yes, we're planning on making the presentations available and I'll inform people on this blog. If you'd like to receive email notification of this, please drop me an email at bev.wears@blf.org.uk so I have your contact details. With best wishes, Bev

Posative profile image
Posative in reply to BevWears

hi bev my e-mail address is gabjules@hotmail.co.uk for info on the presentation on IPf on 26th sep

regards julia

BevWears profile image
BevWears in reply to Posative

Thanks - I'll be in touch. Bev

threeputt profile image
threeputt

I would like details and would hope to attend. I am an IPF sufferer

threeputt profile image
threeputt

forget that just realised I am 2 years late

BevWears profile image
BevWears in reply to threeputt

Hi Threeputt. Sorry you missed this one. We've been holding a series of IPF Meet the Experts events and as a result have started a support group in Newcastle. Not sure where you live but if you'd like more info, please email me on north@blf.org.uk With best wishes.

threeputt profile image
threeputt in reply to BevWears

Hallo Bevwears,

Looks like I should pay more attention to when messages are posted. I live in Staffordshire so depending on where meetings are I may be able to make. If you could let me know when and where, I would be grateful

BevWears profile image
BevWears in reply to threeputt

Meetings are held in Gosforth, Newcastle upon Tyne so maybe not convenient for you. The BLF Helpline has all the details. They will also have details of any other IPF support groups nearer to you . . . I think there's one in the Midlands. Helpline can be contacted on enquiries@blf.org.uk or 03000 030 555. with best wishes, Bev

threeputt profile image
threeputt

Thanks for that I will contact them and get info.

Regards

You may also like...

A week without antibiotics, first time since September! and first day of Spring.

I’m happy today, and my diary tells me first day of spring. Looking forward to going out when car...

Organising pneumonia - how soon do the steroids kick in?

hills etc. There is very little information about this condition available. I spoke to a very...

Aspergillosis and Hyperinflated lungs.

guys i would just like to tell you my problems and hope there’s someone on here to give me some of...

Very clever scam. Please read.

agreeing to the free survey but then thought does BLF still exist. So I told the lady I would like...

NHS text re wifi alerts

You Should have recently received a text from your NHS GP warning you of the following, if you are...