Bronchiectasis and joint pain - Lung Conditions C...

Lung Conditions Community Forum

55,224 members • 65,994 posts

Bronchiectasis and joint pain

12 years ago•10 Replies

I have bronchiectasis for about a year now, but struggling with my joint pain and exhaustion find this worse than the chest problems. Any advice on any thing I could take to help, anti inflam tabs I take when necessary but effect my stomach.

Written by

Billyboo76

To view profiles and participate in discussions please or .

Read more about...

Bronchiectasis

The ability to reply to this post has been turned off.

10 Replies

•

tanyamarie12 years ago

My mum and dad both use dog oil for their joints. There are no active ingredients so shouldn't cause any probs but always read the label first. It comes in a little bottle from health shops like Holland and Barratt and costs about £3. It was first used on dogs (funnily enough) who had arthritic probs like greyhounds. It is very greasy and to be effective needs to be used alot.

Mum has arthritis and suffers bad with her knees and back and dad has sciatica and arthritis as well as lung conditions. They swear by it and lots of others I know do to.

alanjudy12 years ago

The exhaustion is common with bronchiectasis. Have your iron and vitamin D levels checked, I have to take extra vit D as my levels were low. You just have to pace yourself and rest. Men's finals this afternoon - perfect excuse to sit down and fall asleep! I only get pain around my lungs. I would suggest you talk to your GP to see if you have any other reason for the joint pain.

This weather isn't helping at all.

Take care and let us know how you get on.

Judith

Billyboo7612 years ago

Thanks Judith, I see my consultant every four months but backlog of appointments so still waiting. I have had every blood test possible and all come back normal so far. They are still trying to work out why I have got this as fairly young. I do try to rest as much as possible but have 2 small children so not easy. Do you find the weather effects your symptoms?

Marie

dinnyrayner in reply to Billyboo7612 years ago

Hi Billy , I have bronchiectasis ( and emphysema and asthma ) . I have the bronchiectasis since 1958 after a bout of double viral pneumonia , there was a flu pandemic in the winter of 57/58 and was the probable cause . Being so young the bronchiectasis led to emphysema and i picked up the asthma along the way . I do run out of steam quickly and this is getting worse as i am getting older alkso the joint pain started about 8 years ago . I have been told that the joint pain could be down to weak muscles caused by a combination of lack of exercise (not enough oxygen to do so ) and a side effect of steroids . Hope this gives you a few questions to ask xx.

alanjudy in reply to Billyboo7612 years ago

Marie

Yes I do find the weather makes a big difference. My husband says I'm better than the barometer for telling him what the weather will be! This summer is awful. I think all you can do is pester your doctors so they get to the bottom of your problems. Do you have someone who can help with the children sometime ? Is their a local college doing childcare who need placements?

Good luck and let me know how you get on. At least you can let off steam here as we are all in the same boat.

Judith

Billyboo76 in reply to alanjudy12 years ago

Thankfully my husband helps and my mother in law does my housework when I go to work ,bit of ironing cleaning windows etc. I only work two days at the moment. I love my job and really hope I can physically manage to keep doing it. Not many people there know yet as I don,t wan't to be treated any differently. Thank you so much for your support..

Billyboo7612 years ago

I do try and exercise as much as possible swimming, running and going to the gym when ever I feel up to it! I also have a physical job as a care assistant looking after disabled adults. Physio says I need to try to be active as possible, but I sometimes just have to rest and do what my body needs. Guess I'm still quite well most of the time just do breathing and huffing each day. Thanks for all your help. So nice to finally talk to people to understand.

12 years ago

i use cortaflex - brilliant. wa told by a horsey person who had used successfully on a horse. they now make for humans too i had been hurting on climbing stairs and now have absolutely no pain. it apparently has smaller particles that can get to where they need to in joints. it's dear, advice i give is to have 2 or 3 bottles of capsules, then use when you feel you need. i can go many months without them now. and always have them at hand in case i need to take for a few days . I have bougt them for friends and family to make sure they give them a try...all have found great benefit from them.

cofdrop-UK12 years ago

Hi Billyboo

Sorry you have bronchiectasis and arth.

I have had bronchiectasis since 1948 and had inflammatory arthritis for roughly 20 years. I too find because of the constant pain of arthritis all over my body I am increasingly giving up stuff i.e. swimming, yoga and dancing, the problem being that it is not controlled.

Before I was diagnosed with arth I took Ibuprofen for the aches in my legs and back. I didn't at that time realise then you need to take a ppi when taking nsaids - so please if you are taking any non steroid anti inflammatorys see your gp re taking a ppi to help protect your stomach. I have had probs with my stomach ever since - IBS.

Do you take any DMARDS? I tried Hydroxy but they gave me migraine. Been on Sulphasal for nearly a week and my stomach is so sore and I am nauseous. My main worry with DMARDS is how do they effect the constant infections which we get with bronchiectasis. It seems to me we would be forever having to stop them. Really concerned - what have others found helpful for the arth without compromising the lungs? Worried the only thing available which will not effecgt my lungs are steroids, but having bronch I have had my fair share of them in the past and have oesteoporosis.

Need putting down perhaps

Hope you find something to help you sweet.

XXX

Billyboo7612 years ago

Hi cofdrop thanks for the advice, I don,t take DMARDS as yet, they don't sound very nice. Think I will go see my doc and have a chat about what I could try.

The ability to reply to this post has been turned off.