I have now managed 2 weeks with my lungs working as normal as can be. I am trying to get fitter now that I can actually breath to exercise after 9 months of scarey hell. I have refused to take the Spiriva as I have a heart murmur and the BMJ does not give a good write up on that one! They have had to change my inhaler as it would appear I had a reaction Serentide, so the new one has a lower steroid and Im hoping I will not relapse. Throat is still not good, but Im breathing and walking (not running yet). but have managed to walk up hills without grabbing the inhaler and stopping. It may read really sad ! but I was so depressed to the point I would have ended it all if I had to continue in the same way with the doctors at that time.
Thanks to the Lung Foundation and the BLOG for giving me the courage to attack the doctors (not physically of course) and not feeling so alone.I NOW FEEL I HAVE BEEN REBORN and now HAVE A VERY SUPPORTIVE DOCTOR.
So the moral of the story is, if your not happy and getting what you think you should be from your doctor. Keep on complaining and if necessary change your Doctor or if need be Doctors Surgery (I did both).
Best wishes to you all and keep well x