I find this blog so helpful and encouraging that I don't know how I'd keep my spirits up now without it. I have just recommended it to a friend in his early 50's who has recently been diagnosed with COPD and whose confidence was very badly affected, & I'm sure he'll benefit as much as I have. So please, can I have some more help, experience & ideas?
My Consultant said on May 30, "I'm going to refer you to the Brompton - see if they have any ideas". Not too encouraging. So I'm wondering a few things.
Does anyone have any experience of the waiting times from referral to appointment? Also, I'm going to have to travel from Gloucester to the hospital, 120 miles or so. I can drive, and I have a 10 mile range scooter with a hoist in the car, so I should be able to get there and back under my own sream, and no doubt my wife will come with me, However, I'm on oxygen - 4 litres a minute for at least 15 hours a day, with additional ambulatory oxygen. The portable tank only lasts about 2 - 21/2 hours on constant supply and I haven't tried it on the "on demand" setting.
Also, what is the Brompton unit like? Any parking nearby? Are appointments routinely an hour or more late like Gloucester Royal Hospital? Is there somewhere in the hospital where I can get something to eat if necessary (I'm type 2 diabetic as well). Can I assume I can get around on my scooter if I'm sent hither and yon for tests as in GRH?
Even to myself I sound like an anxious old woman (I'm actually an anxious old man!) but I find my previous self confidence at travelling round the world expecting to cope with anything that came up has been eroded so I like to be informed and prepared these days.
So folks, does anyone have any information, experience, suggestions, ideas?
Thanks in advance.