After several slow walks and watching my sats settle at 84% I had started to come to the conclusion that I would need some help in the way of portable oxygen. But have never been assessed even though I have done pulmonary rehabilitation. I belong to Breathe Easy and the respiratory nurse was talking about blood sats and o2 so I asked a question. My sats were at a constant 84%, and have been every time I go for a walk. Is this dangerous I asked. I am pretty certain it puts a lot of strain on my organs, even if when I stop it rises again. I have overdone it, pushed myself often, as many of us are prone to do, then my sats do not get above 90 again for a good few hours. I am now being referred and told I will most likely have to have an o2 pack when walking, or exercising for that matter. A sad day as although I knew this day would come, and it has taken a long time, it still does not make things any easier.
I have also been asked to give my story to a newspaper as they want to do a spread on lung disease and how it effect us. I am sure with only 25% lung function, with all the problems that gives with day to day activities, I can give a good account so expect to have a chat with the reporter soon. I am already making notes on my pad to remember the important points I want to get across. Very easy to forget them on an interview. Yes, it is a very sad day. My lung function is not getting worse, maybe just my acceptance that by pushing myself, by exercising with such low blood oxygen saturation, I may be harming myself.