My daughter (aged 6) has extremely bad asthma, she was diagnosed at 10 months old which we were told by the hospital is one of the youngest to be diagnosed, she is in and out of hospital constantly, she also suffers from bad eczima and has a couple of other issues (incontanance during the night, will not clean herself after doing a poo although is fine if its a pee, she has night terrors)
i claimed DLA last year after being told i could be eligible and was awarded low rate care.
Now in the past year my daughter has suffered from two episodes, where she has been standing and then she has collapsed and seemed to loose concousnous, goes limb for a few seconds but then comes round again and is a bit distorted. i have spoken to the doctor about this and they said there is nothing that they can say it is as she didnt seem to jerk, take a fit etc and without seeing it they are unable to say what it could be.
Now im confused as after speaking to other parents regarding DLA, Health issues and our children, im not sure if im getting the correct award as on the form i explained in detail my daughters issues (except the recent collapsing episodes as i havent informed DLA of these) but i gave in detail the amount of times she has to take medication during the day/during the night, the time i spend up and down during the night dealing with her medication,wheeziness,night terrors, incontanence, how much time shes off school due to illness, hospital stays etc.
I have also went online to check the different rates and entitlement to different rates and from what i can see low rate care is only awarded if your child needs care during the day, middle rate care is awarded if your child needs care during the day and night and high rate is for children who require extensive care. Now i think my daughter should be on the middle rate care but im unsure how i get this reviewed after we have been claiming low rate for a year.
Ive been told that my daughters claim was put on low rate coz i probebly didnt use the correct wording which i think (if true) is an utter disgrace as her DLA claim was fully completed (to the best of my ability), in my own wording, backed up by letters from the hospital, school, doctor and family members.
Has anyone else experienced this issue? any help or advice would be greatly appreciated as i have no idea on any of this.