He was diagnosed 4 months ago when he had a partial collapse in his left lung. The CT showed that his lungs were in a terrible state with giant bulla occupying most of his left lung and a smaller bulla in his right. He has been discharged by his consultant as there is nothing they can do until he is so bad that surgery may be his only option. He isnt on oxygen at present as at rest he has good stats. He has been prescribed Co codamol and tramadol for he pain which only help a little. The consultant suggested he try to live his life as normal but if he exerts himself slightly at all he becomes lightheaded and has collapsed previously. He knows he needs to exercise but even a short walk means he needs to go to his bed. He isnt well enough for them to check his stats whilst exercising so I suspect he isnt getting enough oxygen then. When he is in bed trying to sleep his breathing is worse and he feels like he cant exhale fully. He is a terrible grey colour and this morning said that he cant feel his fingers properly. We were are the COPD clinic last week and the nurse again stated that there is nothing they can do but if he has another Pneumothorax then he should go straight to A&E.
He is trying to stay positive but it is really difficult and is all consuming. I am sorry for such a long first post but I am so worried for him. Is this as good a quality of life as we can expect?