Last week I got confirmation that my transplant assessment has been booked for 24th January. Looking through all the paperwork it's clear that they're going to leave no stone unturned in ensuring that I'm otherwise fit and healthy to be put on the transplant list (should I decide to go ahead of course)!
Ahead of the assessment day I have to keep Covid free, obviously, and provide a negative PCR within 24 hours of the appointment. Going to be difficult sorting one out but I'll find a way. In the meantime, I'm in effective self-imposed isolation to give myself the best possible chance of remaining Covid free.
Again, this puts a big strain on my Dad and wife, too, given that they live with me. My wife had booked tickets to go and watch the new Moulin Rouge musical with her Mum months ago as a Christmas present. I don't want to stand in her way but obviously that's extremely risky so we've decided that she will go and stay with her parents after the show until after my transplant assessment.
The Covid situation also means that I can't have any family with me at the assessment itself which is a real shame as part of the assessment is an opportunity for you and your loved ones to ask questions and seek assurances/answers that will help you make what is a huge decision. I'm sure there are ways that we'll be able to connect with them remotely and I should be thankful that the assessment hasn't been delayed as has been the case with so many appointments for so many people.
I've also been given a hefty information booklet ahead of the assessment which is certainly not light reading but it's certainly given me some food for thought and helped me formulate some of the questions and themes that I want to ask the treatment team.
The assessment day (days really as it involves an overnight stay) will be on me before I know it and in some ways its exciting and something that I'm looking forward to as I'll be that one step closer towards making a decision. At the same time it's all a bit nerve racking as things are soon not going to be hypotheticals but realities that I'm going to have to face head on.
Overwhelmed by all the lovely messages and support after my last post which has definitely helped keep me going. Gping to take it one step at a time, starting with getting to the assessment day with a clean bill of health but long-term I'm determined to give whatever decision I take my best shot.