Hello everyone. I am new here and feel rather out of my depth since I have never posted anything before. I have recently been diagnosed with COPD/emphysema and admit to being extremely scared and worried especially as I have been waiting several weeks to see my consultant again for results of a CT scan and blood tests. I have many questions I want to ask her about my condition and am becoming increasingly anxious. There is so much information on the internet but I don't know which is the correct information!
My current treatment is Trimbow which unfortunately makes me extremely nauseous. Also my taste buds feel as though they have been removed!
It would be good to hear from anyone who also has COPD/emphysema.
Thank you
Written by
milliehenry
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Fear not milliehenry,you are now amongst some of the most educated sufferers of your condition you are ever likely to meet and we will guide you through both your condition and also the means of reducing its progression to the best of our ability.
With regard to the trimbow,there are other suitable inhalers available to treat your condition and i am sure that your consultant will take your concerns into considertion when you first meet.
So welcome to the site,take your time to absorb support and information,we are going nowhere and will always be avaiable to mop your brow and ease your anxiety.Please avoid browsing the internet,it is not the best place to vist when first diagnosed and will only increase your anxiety
Welcome to the site btw and the very lovely picture of your pooch will have the doggie lovers drooling to be sure.
Best wishes Ski's and Scruff's,
😊😻
P.s if the Trimbow is making you feel nauseous ask your Gp surgery to prescibe an alternative Bronchodilator inhaler without the steroid content at least until you have seen your consultant as there are many others on the market and it may be the steroid element of Trimbow that is making you feel sick?
Thank you for your kind response to my first post and apologies for delay in replying to you. Indeed my time browsing the internet is done. BLF is the only place one needs. I am overwhelmed by the response I have had from such friendly people such as yourself and the info. on here is amazing.
No apology needed,i imagine you where quite surprised by the amount of responders but we are like that and keen to welcome new members,especially those who have been recently diagnosed as we know how anxious they can be.I have Empysema and have had if for sometime and even though i am at the end stage of my condition the vast majority of people with the same condition continue to live a relatively normal life into a ripe old age and with a good quality of life if they follow the normal healthy guidelines of living for those even without the condition.
Hello milliehenry I'm foxy79 I have serve copd broncechtisis emphysema respiratory type 2 asthma and odemia and pseudomnas. I'm on oxygen nebulizer and bipeb machine NIV everyday life is a challenge but please don't listen to people everyone's body is different and as you know it's a bad disease more better you maintain it better you're life is going to be for example try to have your vitamin do some exercise have your medication on time have your rest it's hard to maintain everything specially when you're ill but you maintain it means you be like normal person but still you would have limited oxygen which can be good some time's and remember we are very fragile anything can trigger our copd broncechtisis emphysema hot weather cold weather hunger full stamoch everything has to be balanced more quicker you learn and get your body use to it better life you will have take care anything else you want to know please ask
Hello Sassy and thank you for taking the time to respond I really do appreciate it. I can see from what I have read so far I need look no further for information. Or so many kind people. Bless you xx
Hi and welcome. Cute dog! Check the BLF website for good information about living with COPD. As has already been said you are now among friends always willing to help and support you. Do take a list of questions to your consultant appointment and tell them about the problems you are having with the inhaler, many others that might suit you better. Best wishes.
Many thanks for your response. In future BLF will be my one stop place on the web for info. Also it is a friendly place. Thank you so much. As for consultant appointment who knows when that will be ? I just hope not to much longer. Thank you again and hope to speak soon.
Thank you so much for replying to me☺️I am beginning to understand when you say 'you have found so much more'! In future my first stop is going to be the BLF since everyone is so friendly and helpful x
It is kind of you to respond, just a friendly 'face' is just as important as advice. Unfortunately Henry our dog passed away a few months ago due to old age. I miss him so much just now. x
Hi milliehenry and welcome to the site. I am sure you will find plenty plenty of responses to your questions. Love the photo of your pooch, really cute x
Hi Millie. Welcome to the forum. WE are all here for the same reason and you will find us a very friendly lot who are always keen to help each other. Some of us have been on the site a few years, others, less but we all have we all have one thing in common, we want to help and support each other in any way that we can. John 😀😀
My wife has bronchiectasis, not same as copd but severe breathing problems even so. In addition to antibiotics 3x per week and physio 3x per week, she also ensures that dogs go out for walk 3x per day, come rain, come shine. Sometimes its an effort but at least makes the lungs work. We have 2 mini wire dachs so similar size to your yorkie. If you can manage the walk, pretty sure it will help.
Hello and welcome to the forum milliehenry. Any questions ask away and there's usually someone on the site who will be knowledgeable about your problem/s and be able to give you answers.
Hello and welcome to the site it's a great place to meet lovely friendly helpful people , who really do care about each other. It is quite natural to feel scared I should think we've all been there on this site, I know I have. But try to stay positive, have a healthy lifestyle and diet and exercise within reason don't try to over do it. And always make sure you drink plenty of fluids to stay hydrated. We are always here if you need to chat, but please keep posting and feel free to join in with the posts you read. You know what they say Where's there's life there's Hope and I believe that whole heartedly. I'm always here if you want to send me a message anytime. Have a lovely day and take care 😊 Bernadette and Jack 🐕 xxxxxxP.S I love the photo😊 xxxx
Welcome. So many knowledgeable, friendly and funny members who can help ease your mind a little. Exercise if you are able and mind your weight. I have had emphysema for seven years, a lot of good days and a few not so good. Stay strong 🐞
Welcome to the forum, Millie. I'm sure you'll find plenty of positive advice here. I have bronchiectasis, not COPD, but my dad was diagnosed with emphysema in his early 70ies and lived well into his 80ies without the much more sophisticated treatments and regimes available now. A lot of us have found pulmonary rehabilitation very helpful. They show you what you can do (more than you thought), not what you can't. Ask your consultant about it, or possibly your GP. You may have to do it on line, sadly, at the moment. Love the picture of Henry. Sorry to read he's no more, but my avatar is my late beloved cat Sooty- they're never forgotten, are they. xxx
Hello milliehenry, welcome to the site. sorry for late reply . I have COPD moderate was diagnosed in2009 , it is scary at first but sites like this are more helpful as we speak from experience. I used to be a member of British lung foundation forum before Healthunlocked took over. Like yourself I am in the more mature group. Any questions just ask someone will most likely know the answer or their experience. I have another member of family with Emphysema. Love picture of dog really cute looking. There are lots of pet owners on here to chat too also. Enjoy your weekend and hope to speak again soon.
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