Zephyr valves: Hi all Just wondering if... - Lung Conditions C...

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Zephyr valves

Jonn54 profile image
10 Replies

Hi all

Just wondering if anybody has any knowledge of this treatment .and if so did it work for you? Thanks ahead to any replies.

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Jonn54 profile image
Jonn54
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10 Replies
CDPO16 profile image
CDPO16

See the post by Justmesouthwales titled Introduction two days ago and the reply from skischool

skischool profile image
skischool

healthunlocked.com/blf/post... advised by CDPO16

regards

CDPO16 profile image
CDPO16 in reply to skischool

Thank you, don't know how to reference like that

skischool profile image
skischool in reply to CDPO16

Just get the post up Carole and copy and paste what comes up in the top bar where the web address of the subject is,clear as mud i know but not techy enough to explain it better Lol.

😊 x

CDPO16 profile image
CDPO16 in reply to skischool

I actually understand that but still couldn't do it last time I tried 🙄

skischool profile image
skischool

Going by your profile your condition appears to be Asthmatic based so i doubt that endobronchial valves would be a procedure that you would benefit from and you would need to elaborate on why you feel this procedure would benefit you? and have you had a conversation with your consultant to discuss this?regards

Ski's and Scruff's

Jonn54 profile image
Jonn54 in reply to skischool

Hi skischoolThx for the reply

My breathing is getting worse. Had to stop working I last seen cons and suggested maybe treatment with biologic but he just seemed more concerned about cost. So just browsing to see poss other treatments fev1 36% just concerned I'm being left behind. Just a/b s and steroids and now mucolytics

skischool profile image
skischool in reply to Jonn54

Endobronchial valves are normaly inserted as a less invasive method of lung volume reduction surgery for patients suffering from Emphysema so i am afraid that they would probably not be beneficial for your condition but i do hope that you can together with your consultant find a way forward.Best wishes

Ski's and Scruff's

Will57 profile image
Will57

I was tested for the valve's (I'm severe Emphysema) but unfortunately the procedure failed for me which then I was put forward for the LVR Operation and was performed at Papworth in February last year. Just so you know that it is not for everyone.

Jonn54 profile image
Jonn54 in reply to Will57

Thx for the reply willI suppose I'm just clutching at straws I've suffered over 30yrs now and I'm getting worse cons did mention emphysema but down as asthma/bronch not sure what too do next.

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