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Mystery condition

Collie4 profile image

Hello friends,

For the last week i have been suffering with leg weakness and numbness and tingling in my hands and feet. I had a flu type virus a month ago and doctors think it could be related to that attacking my nerves and muscles. I am seeing a neurologist this coming week. It is baffling and i’ve never had anything like it before. Doctors have ruled out a stroke.

Has anyone else ever had anything like this? It is debilitating as normally i am active in spite of having copd.

28 Replies

I’m just hoping that seeing a neurologist will help find some answers Collie4. It’s certainly a mystery. Wishing you well, xxxx💜

Collie4 profile image
Collie4 in reply to sassy59

Thank you. I can’t wait to see neurologist, and i’m hoping it can be sorted.

Hello Collie. 👋

I had this when I had a Cytomegalovirus flare up. Viruses can cause neurological issues I'm afraid. Did they say which virus you had? xx 🌿

Collie4 profile image
Collie4 in reply to Caspiana

Thank you for your reply. I don’t know what the virus was ( definitely not covid). I had flu like symptoms and a nasty cough. Before that, about a month ago i had a flare up of copd and was on clarithromycin and prednisolone. I just hope the neurologist can sort this for me, it is so debilitating.🥺I hope you are keeping well Caspiana.

Collie4 profile image
Collie4 in reply to Caspiana

Were your symptoms similar? I have weakness in hands and feet, tingling in hands, weak legs that cause my walking difficult. Very weak wrists.

Damon1864 profile image
Damon1864Volunteer

I've never had this, but I hope the neurologist can help sort it good luck Have a good day and take care 😊 Bernadette and Jack 🐕 xxxxxx

Collie4 profile image
Collie4 in reply to Damon1864

Thank you for replying. Yes, i hope i can get this sorted, it’s not nice.

Hope you get some answers when you see the neurologist Collie, sounds very disconcerting as well as debilitating. Let us know how you get on xx

Collie4 profile image
Collie4 in reply to CDPO16

Thank you for reply. Yes it is disconcerting. I hope i get some answers from the neurologist.

Have you been checked for shingles? My colleague had something like your symptoms and it turned aut to be shingles. The rash doesn’t always manifest itself on the outside apparently, you can have it inside, which can affect the nerves. I hope you get some answers soon 🐑

I hadnt even thought of that . I will mention to the consultant when i go on wednesday. Would that cause back pain and weak legs and hands, and tingly hands?

I don’t know. In the case of my colleague, she had shingles around her bladder and stomach which caused the tingling and weakness in her legs, aching legs and back, and a sort of numbness / tingling in her hands. I guess the specific location of the shingles would affect different parts of the body differently. It may not be shingles in your case, I’m certainly no expert!! But your description immediately made me think of how shingles affected my colleague.

I have hand pins and needles in my legs and hands since i had covid in March 2020 . It is due to neuropathy and Ive been prescribed gabapentin which helps a little . On the fb Long Covid group there are thousands of people that have this as one of their symptoms . Im also having a lip biopsy as my neurologist thinks i have sjurgrens syndrome . Im afraid there is no real remedy for this .

Collie4 profile image
Collie4 in reply to sandra1958

Thank you for your reply. I’ve not had covid. Had 2 negative pcr tests in the last month when i had flu cold and cough. I have heard of neuropathy. I’m hoping the neurologist has some answers and can help me.

Collie4 profile image
Collie4 in reply to sandra1958

Is your balance ok.? Do you manage to walk steady. My legs are weak and wobbly.

Hope the neurologist can diagnose the problem so that you can get any treatment needed.

I have experienced those symptoms many years ago ,after having blood tests it was found i was b12 deficient also d3 ,hope they get to the bottom of it for you ,keep safe , Alice

Collie4 profile image
Collie4 in reply to Alice70

Thank you for your message. I am hoping it’s nothing serious, or long term. Are you fine now? I hope so.

Alice70 profile image
Alice70 in reply to Collie4

Yes ,I have injection of b12 every 3 months for past ten years ,my vitimin d level are fine now although I do take it in the winter as it is the sun shine vitimin ,I am fine in that respect just wish I could breath better,do let us know how you get on with neurologist

Gladwyn profile image
Gladwyn in reply to Alice70

Hope you are ok now!

Collie4 profile image
Collie4 in reply to Gladwyn

Unfortunately no. I am still suffering with this numbness and wobbly legs. I am seeing a neurologist tomorrow so hopefully he will have some answers and help me . Thank you for your message.

Collie4 profile image
Collie4 in reply to Gladwyn

I realised after you sent that message for Alice70. Sorry.

Gladwyn profile image
Gladwyn in reply to Collie4

Heavens don’t apologise. I’m sending you the best possible wishes for your symptoms to ease. Must be awful for you! 🙏🍀🦋

Collie4 profile image
Collie4 in reply to Gladwyn

Thank you.Yes very debilitating. I’m seeing neurologist this morning.

Hi Collie. Really sorry you are suffering these symptoms which are causing your disability. I do hope the neurologist will diagnose the problem and effective treatment. Good luck and best wishes xxx

Collie4 profile image
Collie4 in reply to HollyBoyd

Thank you for you kind words.

That's not much fun is it. I hope the Drs get to the bottom of it soon. All the best x

Collie4 profile image
Collie4 in reply to stamford1234

Thank you. No it isn’t much fun. I’m used to being fairly active, and independent. It’s very debilitating having something like this. I’m hoping the neurologist has a magic cure.! But i doubt it.

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