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cjc13c profile image

Hi just to say hello I have got emphysema 70 years old can't walk the length of myself have a good day

64 Replies
Damon1864 profile image
Damon1864Volunteer

Hello cjc lovely to meet you and welcome to the site to it's full of wonder kind friendly people . Have a good day and take care 😊 Bernadette and Jack 🐕 xxxxxx

cjc13c profile image
cjc13c in reply to Damon1864

Thankyou

Hi and welcome cjc13c. I am a couple of years younger than you and also have emphysema. You have come to a great place for support if you need it or some fun and entertainment too.

cjc13c profile image
cjc13c in reply to CDPO16

Many many thanks

Welcome cjc13c,there are many here that can walk the good walk and many here than can only talk a good talk but we all get on surpringly well given the variety of our conditions and abilities and i am sure you will find much support and good advice in coping with your condition.Best wishes Ski's and Scruff's

🙃

cjc13c profile image
cjc13c in reply to skischool

Many many thanks it's just a shock makes me cross

Welcome to the forum cjc13c. I’m carer for my husband Pete and he has COPD but chronic bronchitis. He can’t walk far but enjoys using his mobility scooter. Stay as well as you can. Xxx

cjc13c profile image
cjc13c in reply to sassy59

I will many thanks

Welcome to the forum

cjc13c profile image
cjc13c in reply to Patk1

Many thanks mate

Welcome! There is a wealth of fun and information on here from a lot of really nice people that I'm sure you will benefit from.

cjc13c profile image
cjc13c in reply to Annie31

I'm sure I will thanks

Hi know the feeling.so angry at myself for smoking.would love to walk in hills where I live instead of viewing from window.if only we could turn back time.try to stay positive.

cjc13c profile image
cjc13c in reply to P-i-n-k

Yeah me too my son smokes now he is 40 no sence at all but they know it all

Maricopa profile image
Maricopa in reply to cjc13c

I have one son who smokes. None of the others do. We have always been a non smoking family. And I was shocked finding out he’d begun after moving out. A girlfriend smoked and that associate was bad for him in many ways. We have genetic alpha 1. So I’ve ingrained it in all my children no smoking. So it drives me mad. I still send daily reminders that I’m sure he ignores. It makes no sense to me. He’s 33.

ck101 profile image
ck101 in reply to Maricopa

Tough one, I’m busy drumming into my teenagers heads but they think I’m nuts! I know their friends are all vaping, vaping CBD and smoking cigs. Might as well be talking to the wall!

Maricopa profile image
Maricopa in reply to ck101

I know🤦🏼‍♀️🤷

Susan1200 profile image
Susan1200 in reply to P-i-n-k

Totally agree,.

Welcome cjc13c, I think there's a lot of us here that can't walk far but manage a bit of a wobble along. 😉

cjc13c profile image
cjc13c in reply to Don-1931

Yes I now know what it is like thanks

Hello cjc13c and welcome, I am 71, Many years ago I used to go on long walks, uphill and downdale but have had to get used to the fact that I can no longer due to health issues, one of them being emphysema and another being heart failure, both of which affect the breathing so I also can't walk very far without getting out of breath. Many of us on here have similar problems with the breathing issue so you are in the right place. Lots of very friendly people here for support and sometimes there is also humour. Usually someone around to have a chat to, or a rant if you need to get something off your chest (no pun intended) so to speak. Enjoy your day and take care. xx

cjc13c profile image
cjc13c in reply to Snackjack

Hey many thanks for the info

helen1946 profile image
helen1946 in reply to Snackjack

Do you take digoxin for your heart failure

cjc13c profile image
cjc13c in reply to helen1946

Not sure will let you know got a stent in about 2 years ago but will let you know

helen1946 profile image
helen1946 in reply to cjc13c

I look after my husband emphysema and heart failure and hypoxic brain damage from earlier illnesss atrial fibrillation ect he cannot read or manage money or tablets any more but we have been together over 60 yrs.on an everyday basis we get by i am in wheelchair need a new hip and new knee and just had my 4th cancer op.recovered well so happy but i know i have to keep on top of his condition as drs tend to think why treat him but he loves to go to a show now and again and pushes my wheelchair(it helps him walk a little) still manages a little walk with our tiny dog 5am in the morning.you adapt i think and try to make life a little bit specialxx

cjc13c profile image
cjc13c in reply to helen1946

Yes I agree,, my you have a lot going on

Snackjack profile image
Snackjack in reply to helen1946

Not on that, Managed to get an appointment with the Heart Failure Nurse Specialist on 11th October, hope she can come up with something to help. Spoke to the Cardiologist on a phone appointment which I think was a bit pointless as he couldn't check me over via the phone. I know hospitals are busy but not everything can be dealt with over the phone. The damage to my heart was done with a heart attack in 1988 and they didn't put stents in all those years ago so the heart has gradually got worse. Still after 33 years grateful to still be here. xx

cjc13c profile image
cjc13c in reply to Snackjack

You are doing well keep it up thanks

cjc13c profile image
cjc13c in reply to helen1946

No I take Bisoprolol 1.25mg

Welcome I hope you enjoy the dodgy lung club!

cjc13c profile image
cjc13c in reply to Chriskho

Ha ha many thanks

Welcome. Just remember COPD is not Terminal but Progressive. You determine how fast it progresses and can even slow it down. Concentrate on what you can do and not what you cant. Remember there is always someone worst off than yourself.. I was diagnosed 11 yrs ago with Severe COPD and still doing everything ,just a lot slower. I go at my own pace and enjoy every moment. Plenty of support here .👍👍🙌

cjc13c profile image
cjc13c in reply to garshe

Great well done thanks

garshe profile image
garshe in reply to cjc13c

If you concentrate on your breathing. In slowly through nose, hold ,out slowly through mouth. It will help with breathlessness . Ask your Respiratory team to book you on a Pulmonary Rehab Course. Its twice a week for 2hrs a time for 6weeks. Really beneficial as will increase your mobility and lots of information. You also meet others like yourself .Good Luck xxSheila 💕💕

cjc13c profile image
cjc13c in reply to garshe

Never had a Respiratory team will look into that thankyou

garshe profile image
garshe in reply to cjc13c

Your GP or Practice Nurse at surgery can also put you forward to the Respiratory Team for Rehab Course.x👍🙌

SparkySW123 profile image
SparkySW123 in reply to garshe

Hi garshe. Your reply to ckc13c is very reassuring to me too! Like you i have severe COPD plus a collapsed middle lobe of the right lung as a result of catching Type A influenza in January 2020. There are many things I can no longer do but at least I have done them and have happy memories. As for yourself the fact tht you go at your own pace and enjoy every moment is heart warming. You've inspired me!

cjc13c profile image
cjc13c in reply to SparkySW123

Yes indeed

garshe profile image
garshe in reply to SparkySW123

I was put on oxygen 16hrs a day last December owing to severe shortness of breath and oxygen level dropped to 77 It was the result of being in total Lockdown for 10months and not going out walking etc. As most know on here my excercise is not the Gym its walking around the shopping centres . I can walk 10,000 steps sometimes. Not all at once stopping resting even stopping for lunch and to chat to friends.... this stopped in Lockdown.

I had a longer tube connected to my oxygen so I could walk around the house and even around the decking in my garden.

Went to hospital for oxygen test March and I had managed to be border line for oxygen as my level was up to 89/91

Kept up the walking and increased it daily .In June back for another checkup and was taken off oxygen completely as my oxygen level was 95/96.

I am back out and around the shops again and loving it without oxygen.. I dont rush just walk at my own pace. I also remember to breathe as so easy to go into panic attack if you hold your breath.

Sorted my health anxiety and panic attacks out as not afraid anymore

If I can do it anyone can. I am grateful every day for my life and appreciate every second.

My diagnosis 11yrs ago of severe COPD said 1-3 yrs left . Well proved that wrong as still here and still doing everything at 77yrs young..

Good luck just be Positive and avoid negativity.. I wish you good health xxSheila 🙌👍💕

Ne eating crepes on my shopping trip. 🙌👍
cjc13c profile image
cjc13c in reply to garshe

I really will many thanks

SparkySW123 profile image
SparkySW123 in reply to garshe

Congratulations! You are my hereo or should it be heroine!You've done so well. A few years ago, I was on oxygen 15 hours a day. Borderline permanent. Had my home oxygen concentrator removed some months ago now. Still have problems breathing at times particularly in mornings trying to get my sats up to a reasonable level. I still have to use oxygen when out and about though. Go well. Christina xx

Gingerboy1960 profile image
Gingerboy1960 in reply to garshe

Thanks for your inspiring post Sheila. Since my diagnosis I definitely appreciate each day of my life now, you really can choose how you feel 🧡

garshe profile image
garshe in reply to Gingerboy1960

Correct Gingerboy I have learned you can either feel sorry for yourself or be Grateful for what you have. I avoid negativity and dwell on the Positive. It has worked for me. I am 77yrs young and grateful for every day, I dont get depressed about getting old as many never got that privilege. I concentrate on what I can do not what I cant.

Off out to do my excercise, No ,not at the Gym 😱 but walking slowly around my shopping precincts, stopping to rest and to chat to people.

The sun is shining here in Wales, making the most of it whilst it lasts. Have a fab day , wishing you good health and happiness xxSheila 👍🙌💕

Hello cjc13c welcome to the group

cjc13c profile image
cjc13c in reply to B0xermad

Many thanks

Hello and welcome cjc13c. I am a few years younger with emphysema and a few other problems. I find this site so helpful, be it for just chatting or for asking a question that others may be able to help with. Best wishes, John

cjc13c profile image
cjc13c in reply to johnderby

Many thanks for that

Hi there.......I'm 72 and i have emphysema, Afib and heart issues.....I can't walk far either and also my core is weakened so my back aches when i walk anywhere and i end up stooped over....I have found a rollator invaluable.....I can't tell you how fantastic it is....I can walk a mile with it.....I too get fed up and watch people doing every day things i used to do but can no longer....There's always people worse off and with far more challenges ....So chin up....and good luck.....Jess xx

cjc13c profile image
cjc13c in reply to majjic

Hey many thanks don't mean to sound silly but what is a rollator

majjic profile image
majjic in reply to cjc13c

It's not silly....Follow this link (it's not an advert) and it will show you one.

completecareshop.co.uk/mobi...

I hope that clarifies things.

cjc13c profile image
cjc13c in reply to majjic

Yes it does and I will now invest in one many thanks for the info

majjic profile image
majjic in reply to cjc13c

You're very welcome....You can even take them abroad.....I take mine right up to the aircraft door.

cjc13c profile image
cjc13c in reply to majjic

Good idea

Hello and welcome

Many thanks for the welcome

Hi cjc, , welcome to the site . I care for my husband who is a couple of years older than you and has emphysema . Like you, he is struggling to walk very far at the moment , fingers crossed the meds kick in and there’s an improvement soon for both of you 🤞😊. Stay positive and enjoy the forum , it’s supportive, informative and fun !

I will many thanks

Same here and im 73 good luck and stay positive xxx

cjc13c profile image
cjc13c in reply to etheal

I will

Hello and a warm welcome to the forum. You will find lots of support and advice from our members. If you live in the UK and would like a chat to one of our nurses to see if they can help with the management of your COPD, you are very welcome to call us on 03000 030 555. I have added a link below from our website you may find useful.

blf.org.uk/support-for-you/...

Take care

Debs

Hi and welcome. I too am 70 and have emphysema. This is a great site to lift your spirits, learn, laugh and meet people with lung ailments 🐞

cjc13c profile image
cjc13c in reply to Nicholatracy

Many thanks for the welcome

Hi cjc. Just seen your post and wanted to say hello and welcome to the forum. Great place to find friends and get invaluable advice, also some very amusing posts which give us all a laugh. Best wishes xxx😊

cjc13c profile image
cjc13c in reply to HollyBoyd

Many many thanks

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