Update on the update 🀣🀣: Today I went... - British Lung Foun...

British Lung Foundation

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Update on the update 🀣🀣

β€’87 Replies

Today I went to collect my medication including my new antibiotics and more steroids , as the pulmonologist stated there was more interested for me ! An appointment as been made for me to go into hospital on the 23rd August and I will stay in over night as they want to do a biopsy on my kidneys , what I was originally told I had 3.8 cm cyst on one kidney and a 2.7cm on the other but today the pharmacist explained that the biopsy is important I asked why a biopsy for a cyst she explained that the Greeks call a tumor of any description a cyst and even though the sizes may seem small they need to find out if they are melignant or benign like they did with my leg , hopefully they will be Benign 🀞🀞🀞 but the pharmacist explained that this could also be the cause of my high white cell count . If that's the case they need to do further tests on my lungs aswell .so I know I'm getting sorted out but it really is starting to get a bit stressful .

Thankfully I'm hoping that welfare will have a placement for my stepfather by the time I go in hospital . The pharmacist was very helpful and explained so that even a village idiot like me could understand.🀣

87 Replies
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Your pharmacist has been very helpful it seems Dave. It's bound to be stressful for you right now but the medics are moving with your best interests in mind. The 23rd August is quite near so hopefully that will stir the welfare team into finding a placement for your stepfather. Wishing you well xx

in reply to CDPO16

The pharmacist as been very helpful over the past few years which is really good . She's also getting me vaccinated which is something I've been struggling with getting because I don't have Greek health cover but she's using a back door into the system so I'll get done while I'm hospital

I'm keeping all my fingers crossed for you.xx

in reply to Littlepom

Thank you xx

Some good news with getting vaccinated, you really do not want to get Covid. From my own experience it was worse than when I had Pneumonia. The fatigue and increased shortness of breath with 3 months of Long Covid was very hard to deal with, putting my top left lobe to one side, I am still not sure whether the other multiple areas of scarring that is suddenly of concern and showning up is a product of that Covid infection.

in reply to 2greys

Doesn't sound too good

2greys profile image
2greys in reply to

It is what it is, but given your own disease, you would be well advised to make sure you accept the vaccination.

in reply to 2greys

Definitely not going to refuse it , πŸ‘

No wonder yr finding it stressful. Youve lot going on.and yesterday,well u were really put thro it.take it 1day at a time.rest up as much as yr able xx

You’ve gone through a lot recently and it seems as if the Greek health service is doing it’s best for you. I hope they find a placement for your stepfather, that’ll be one less worry for you.

in reply to helenlw7

It will help if I know that my stepfather will be in a care facility so I can concentrate on myself for once . Hope that doesn't sound too selfish because it's not meant to be

Bkin profile image
Bkin in reply to

Not at all selfish Dave, you need to put yourself first at this time.

Trust everything works out well for your step father's care as well as your own thus helping to relieve some of the stress, it certainly looks like the medical profession in Greece are looking after your health well.

Very best wishes to you.

BK

in reply to Bkin

πŸ‘

helenlw7 profile image
helenlw7 in reply to

Not at all selfish at all. My husband is in the early stages of dementia, and it’s difficult to not focus on his issues, but I have my own health issues of my own related to my rheumatoid arthritis.

in reply to helenlw7

Not easy going

Alberta56 profile image
Alberta56 in reply to helenlw7

I hope it's not selfish, because I'm in the same boat husbandwise. Take care of yourself. xxx

in reply to Alberta56

I think sometimes it's how we feel inside we always feel were not doing enough when if the truth is known were probably doing far more than we need to

helenlw7 profile image
helenlw7 in reply to

I totally agree with this. I think it’s very hard being a carer for a relative. Your inner conscience makes you give more than you need. I hope you understand this and it doesn’t make me sound like a selfish person.

in reply to helenlw7

Your no way selfish I'm feeling exactly the same way but the welfare worker really put me down the right direction apparently it is common for family caregivers to feel this way .

Thinking of you and hoping all goes well.

in reply to Alberta56

Thank you

I hope the further tests sort some things out for you so that something can be done and make life less stressful. It will be easier if your stepfather can be found a placement. That will help too. All the best x

in reply to Carnival567

Cheers and I won't argue about the placement πŸ‘πŸ‘

It’ll make life easier for you both.

Sounds like they are looking after you well. Will think of you especially on the 23rd. Please let us know how you get on.Cx

in reply to cofdrop-UK

I will do but in all honesty it's kinda put me on edge . I get adjusted to one lot of problems and now something else . Sometimes you just want it to stop if that makes sense . I feel like my whole body is fighting me , but as the pharmacist said this as been building up over the past few years and I've been pushing it on the back burner , it's my defence mechanism . But she also said that I should know when you have one serious problem others become linked to it . My lungs my leg my kidneys .

cofdrop-UK profile image
cofdrop-UK in reply to

It really does make sense and something we relate to.xxx

in reply to cofdrop-UK

Yes but for me it's all a lot to process

Well it’s all happening Davey and I can understand you’re feeling somewhat stressed. It will be great for your stepfather to be settled somewhere too. I really hope the biopsies go well and the tumours/cysts are benign. The pharmacist is doing a good job. XxxπŸ‘πŸ˜˜

in reply to sassy59

I can't grumble at all but that's small Greek village life I guess πŸ‘

You've been very lucky to get into the system there. Better than here, I think. You are definitely one of the village now.

in reply to Jaybird19

It seems like my attitude and respect for the people have drawn me in and accepted . Everyone as had their part to get me where I am now. But as I said to the pulmonologist because she said about support groups in Athens I said I have one on my phone . Here

Annie31 profile image
Annie31 in reply to

A fine sense of community spirit and you can be sure they won't have helped you if they hadn't liked you!

in reply to Annie31

I guess not but I have always tried to be respectful and helpful and follow their laws .

Annie31 profile image
Annie31 in reply to

As anyone should if you're in a foreign country! Pity it doesn't happen here often enough! I seriously think you are so much better off in Greece what with the attention you are receiving and the weather and fresh food is a bonus I should imagine. Glad to see you have had a welfare officer out to see you so quickly. It didn't take her long to assess the situation did it?!!!

in reply to Annie31

No he was very quick but everything was in front of him and he could see for himself 🀣

Annie31 profile image
Annie31 in reply to

Oh it's him, not a her! Probably just as well but they do have a trained eye so to speak so its all good. Have a good weekend!

in reply to Annie31

Well not got much planned at the moment except for one thing I'm going to watch the stars from my varanda tonight and every other night for as long as possible

Annie31 profile image
Annie31 in reply to

Good for you! Things won't happen overnight but they will be aware of the urgency I'm sure.

in reply to Annie31

Their pushing for before I go into hospital

That's very informative from the pharmacist, a kidney biopsy is not to stressful but important to do and they keep you in overnight because of you blood pressure and being kept an eye on, I had it done in 2016 .Good luck Davey1963

in reply to B0xermad

Thanks yes because the pharmacist speaks fantastic English the pulmonologist said that any information I need from any of the specialists will be passed on through the pharmacist I get the information pretty much the same day because she lives local so not going out of her way and she can explain in easy terms all the information they need me to be aware of . It's like this morning I had a bit more information which when I had my meeting with all of the specialists I asked for , I asked for a DNR notice to be placed on my file which is my right as I'm well aware of what it is and I'm not suffering from any issues mentally . Well Elani the pharmacist dropped my dad's eye drops off Which he as for pressures and she also informed me that on all medical documentation here my DNR notice as been placed on it . So another thing dealt with .

B0xermad profile image
B0xermad in reply to

Always a difficult one the DNR if you have certain conditions I know that uk hospitals put it on your notes as standard ,my mum had copd and dementia so they called us into the office and told us it was protocol there.1 thing I worry about if I go in for a knee op with bronchiectasis, asthma and copd will they do the same to me ?

in reply to B0xermad

Tough one , I made the decision to have it , I was asked several times if I was positive I wanted it adding and they got the same answer . It personal choice yet again some may say I'm wrong because I could last a year three or five only god knows but I want to go on my terms .

B0xermad profile image
B0xermad in reply to

Definitely a personal decision and who knows how or what is going to happen in the future 🀷

in reply to B0xermad

We're only human if we could see into the future I'd be looking for next week lottery numbers πŸ˜‚πŸ˜‚πŸ˜‚

No it has to be a discussion with informed consent whether they agree or not if you have capacity it's always your choice.

Also to add it doesn't matter if you have mental health issues if you have the capacity to understand and make that decision. Hope that helps.

Only if your next of kin has power of attorney for health and wealth they will be brought into discussion. Or others if you lack capacity. XπŸ™‚

in reply to mylungshateme

Well with my next of kin being my stepfather who as dementia it's not an option . I've got everything else pretty much covered I've handed via post my emergency contact information to the British consulate here on the island which I was told I had to do beings I'm aware of being terminal . So I have all bases covered

Good luck Davey. Hope all goes well in every way.

in reply to Biofreak

Thank you so do I I could do without any more issues to deal with πŸ‘πŸ˜‚

Wishing you all the best as you go through all this. Keep putting one metaphorical foot in front of the other, and you'll get through it in time.

in reply to Ergendl

At the moment all I'm seeing is one problem adding to another the snowball effect and it's getting me down big time . I put on the brave face and keep smiling but it's not how I'm truly feeling

Ergendl profile image
Ergendl in reply to

Big virtual ((((hugs)))). It's a bit like when you have to walk through a blizzard: head down and just keep going one step at a time. What is lovely are all the caring Greek people who are doing their best to support you through this. One of the things I have always loved about Rhodes.

in reply to Ergendl

Communities used to be like it in the UK but I'm living in the past on that one πŸ˜‚πŸ˜‚

Ergendl profile image
Ergendl in reply to

One of the reasons I love Rhodes so much. And the way they expect you to be sensible, rather than putting up health and safety notices everywhere.

in reply to Ergendl

Yes then I come along Mr irresponsible πŸ˜‚πŸ˜‚

Such a lot to contend with and with the added language barrier, it's not surprising your feeling a bit wobbly. Good luck seriously though. XπŸ™‚

in reply to mylungshateme

I take each step carefully and hope I don't stumble it's all I can do

Good luck with your tests on the 23rd , sounds like you have a good chemist like myself . stay safe

in reply to katieoxo60

Thank you andd yes a brilliant pharmacist here they do go the extra mile

Good luck on your appointment. Hope everything turns out good.πŸ’―

in reply to Imnotright

So do I

Imnotright profile image
Imnotright in reply to

Keep us updated?

in reply to Imnotright

Will do .as always .

Imnotright profile image
Imnotright in reply to

Thank you

in reply to Imnotright

Always welcome 🐱🐱

You are well into the system now Dave so hopefully you will have all necessary tests and biopsies , and be treated for the outcomes. Wishing you all the very best for next week. Thinking of you xxx 😘

in reply to HollyBoyd

Cheers πŸ‘

Don’t put yourself down Dave, your coping with a lot which hopefully is slowly getting sorted out. Fingers crossed that the Social move quickly and get your Dad sorted too. Take care. Jax 🐢x

in reply to HighGables

I sure hope so I want him to spend what ever time he as happy in some way he needs help I can't give because my own health issues have kinda taken over .

Wishing you all the best Davey x

in reply to Izb1

Thank you 😊😊 got lots to think about in many ways and hopefully my life can and will move forward in a more positive direction

Wow, Davey, you have a lot going on at one time. I wish you the best news with the biopsy and hope all gets sorted out for you. Your attitude is very admirable. You're a warrior for sure!

in reply to dunnellon

I finally am a man on a mission with new reason to fight tooth and nail

Hold their feet to the fire until you get your answers!

πŸ˜‰

in reply to dunnellon

I will do πŸ˜ƒ

My Son has Polycystic kidneys and he has lots of cysts on his. Let’s hope it is cysts and nothing else. I’ve got the worry of a nodule in my lung and interstitial at the base of my lungs.

in reply to Mavary

This is the one thing that is concerning me because I've heard of cysts on the kidneys before but here a cyst is what they call a tumor and obviously having a benign tumor on my right shin bone they called it a cyst but the pharmacist explained that it's a tumor and that is how it is called here . So I'm linking my lungs kidneys and leg all together as a job lot of that makes sense to you

Mavary profile image
Mavary in reply to

My Dr told me that most as they get older can get cysts on the kidney. So try not to worry. They are checking to make sure.

in reply to Mavary

I'm not letting it get to me.

good for you. That’s the right attitude.

in reply to Mavary

πŸ‘

hope all goes well.Keeping fingers crossed for you 😘

in reply to Dilly2

Thanks 😊

Oh dear, all the best of luck to you, the good thing about being in hospital is they wait on you hand and foot, a nice change from always caring for others.

in reply to fantwalk

You don't get that here if you are in hospital family members come in to help do alot of the basic things .

fantwalk profile image
fantwalk in reply to

Yes, same in Australia, family members help with changing bed sheets, showering, laundry, but we do get meals, tea and coffee served to us by the hospital. Nurses provide medication too.

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