Some good news!: I have some good news... - Lung Conditions C...

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Some good news!

dunnellon profile image
76 Replies

I have some good news to share. Had a call from my CyberKnife doctor the other night to discuss the results of the latest CT since the last treatment in Dec. She said the tumor on my right upper lobe is obliterated. I have some residual radiation inflammation and everything looked as she expected and no swollen lymph nodes. I get another CT in 3 mo. and if the inflammation is still there, I go on a short round of steroids. After that, we do a PET at the one year mark. I know life can change in heartbeat, but right now I am relieved, joyous and grateful for the support of friends, family and forum family who understand and offer assistance, comfort and encouragement. My daughter was visiting from Washington at the time and it was the first time we've been together in 2 years and she and I and Hubs did our happy dance!

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dunnellon profile image
dunnellon
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76 Replies

👏👏Great news!

dunnellon profile image
dunnellon in reply to

Thank you Don! Love sharing good news.😊

MELNEL profile image
MELNEL

I am very happy for the both of you 💗💗💗Fantastic news!! 🎉🎉🎉🎉

dunnellon profile image
dunnellon in reply to MELNEL

Thanks so much! It's nice to be able to share a happy dance!

Annie31 profile image
Annie31

That's wonderful!

dunnellon profile image
dunnellon in reply to Annie31

Dance with me Annie! At least a swish of the hips!😘

Annie31 profile image
Annie31 in reply to dunnellon

Love dancing, me! I'll have a sway whilst sitting down in my chair!😀😀

madonbrew profile image
madonbrew

Aww that is great news dunnellon! And a happy dance to celebrate 🎉 sounds perfect! 🤗😘🌺

dunnellon profile image
dunnellon in reply to madonbrew

Even my 'no rhythm' Hubs did a twirl!😆

skischool profile image
skischool

We do love good news stories on the dodgy lung site as it kind of gives us all a boost so hopefully your stories will continue for some time to come.Keep on dancing,it could become infectious and thats the sort of virus we would all like to catch.

🙃😻 x

dunnellon profile image
dunnellon

I feel you all are my dancing partners! Kick up heels when we can!

Katinka46 profile image
Katinka46

So pleased for you, and lovely to be able to share it with your daughter.Happy dance? Share a video?

dunnellon profile image
dunnellon in reply to Katinka46

Dance like nobody watching?

😀

Izb1 profile image
Izb1

Wonderful news dunnellon, I have joined in and had a jig round the kitchen, happy days x

dunnellon profile image
dunnellon in reply to Izb1

You've got the beat!

Izb1 profile image
Izb1 in reply to dunnellon

I sure have, especially when we receive such good news x

2greys profile image
2greys

That is such great news to hear. These 'new generation' of life saving, radiotherapy, machines really are a miracle of modern science. You can now look forward to a new, stress free, lease of life. I wish you well in the future, with the new outlook on life that all cancer survivors feel.

dunnellon profile image
dunnellon in reply to 2greys

Thank you 2greys! I have much gratitude for the medical advancements!

Alberta56 profile image
Alberta56

Oh that's great news- Hooray!!!

dunnellon profile image
dunnellon in reply to Alberta56

Thank you Alberta56!

Ergendl profile image
Ergendl

What great news! What a great time to do your Happy Dance!

dunnellon profile image
dunnellon in reply to Ergendl

It is wonderful to be able share some good news!

Croydonia profile image
Croydonia

Wonderful news dunnellon! I’m very happy for you.

dunnellon profile image
dunnellon in reply to Croydonia

Thank you so much!

gingermusic profile image
gingermusic

Well done lovely to hear some good news for a change

dunnellon profile image
dunnellon in reply to gingermusic

It is fun to share some positive vibes!

gingermusic profile image
gingermusic in reply to dunnellon

Completely agree to much doom and gloom in our lives at the moment isn't there?

dunnellon profile image
dunnellon in reply to gingermusic

There's some light at the end of the tunnel! Let it shine!

gingermusic profile image
gingermusic in reply to dunnellon

Completely agree with you

peege profile image
peege

Thats such lovely news to read on a Sunday morning. 👏 👏 💐💐 💐

dunnellon profile image
dunnellon in reply to peege

Enjoy your day and thank you!

CDPO16 profile image
CDPO16

Great news for you dunnellon and your daughter being here at the time was the icing on the cake.

dunnellon profile image
dunnellon in reply to CDPO16

It truly was! Thank you!

sassy59 profile image
sassy59

Fantastic news for you dunnellon. Xxx💖💜💖

dunnellon profile image
dunnellon in reply to sassy59

Thanks sassy59! This forum family is always so supportive.

sassy59 profile image
sassy59 in reply to dunnellon

It certainly is. Xxx

watergazer profile image
watergazer

🙌🙌 great news and how wonderful your daughter was there to share and celebrate too x

dunnellon profile image
dunnellon in reply to watergazer

Yes, and she's a much better dancer than I! Gave it a little class!

😀

watergazer profile image
watergazer in reply to dunnellon

😀

Aingeful profile image
Aingeful

How lovely to get good news!👍

dunnellon profile image
dunnellon in reply to Aingeful

Yes, like not a cloud in the sky!

Dedalus profile image
Dedalus

Amazing news - what a relief for you 🥰🥰🥰

dunnellon profile image
dunnellon in reply to Dedalus

For sure! Thank you!

MoyB profile image
MoyB

Wonderful news! Keep dancing!xx Moy

dunnellon profile image
dunnellon in reply to MoyB

Let's all dance when we can, right?!

Suzie42 profile image
Suzie42

Great news, what a relief for you. Lovely your daughter could share and celebrate with you 👏🍾

dunnellon profile image
dunnellon in reply to Suzie42

It was wonderful news to share with her and with all of you!

HighGables profile image
HighGables

Brilliant news, so happy for you. Jax 🐶

dunnellon profile image
dunnellon in reply to HighGables

Lifts one's spirits!

Snackjack profile image
Snackjack

That all sounds very positive, really pleased to hear such good news😊👍😊👍

dunnellon profile image
dunnellon in reply to Snackjack

Thank you! Good vibes are meant to be shared!

Patk1 profile image
Patk1

Such gd news 4u xxx

dunnellon profile image
dunnellon in reply to Patk1

Thank you Patk1!

Shirleyj profile image
Shirleyj

Such good news, 🌹🥀🌺💮🌸🌼xxx

dunnellon profile image
dunnellon in reply to Shirleyj

Thank you Shirleyj!

HollyBoyd profile image
HollyBoyd

Fantastic news dunnellon, and to have family with you to celebrate was just perfect xxx

dunnellon profile image
dunnellon in reply to HollyBoyd

It made the news extra special to be able to share it nose to nose!

MacColl profile image
MacColl

Wonderful news! It can seem like a lifetime waiting for those scan results, but when the news is so good, then it's worth the wait! :)

I've had Gamma Knife surgery to two separate brain lesions in the past 9 months, and do wish we had it for the lungs too! - I've had a course of SABR treatment for the lung ones, and while it was stable at the last scan, I can't help wishing I could have the Gamma Knife treatment for those.

Seems the first brain lesion is still in the icky looking stage, and the second was only seen/done last month, so the first scan for that will be perhaps July.

Wishing you well for future scans ...may they always be good!

sassy59 profile image
sassy59 in reply to MacColl

Wishing you well too MacColl. Xxx

MacColl profile image
MacColl in reply to sassy59

Thank you! I'm still feeling out of sorts since the treatment, but better than it was, so hoping it feels OK soon. 😊

dunnellon profile image
dunnellon in reply to MacColl

Wishing you well too! My first scan was a baseline at 1 mo. and didn't show any change. This one was 3 mo. after that. I feel very fortunate to be able to have the CyberKnife treatment. I know of many in the meningioma (Meningioma Mamas and Papas) forum who have had much success with Gamma Knife, and CyberKnife is becoming more popular here as a first line treatment rather than only for those who aren't good candidates for surgery.

MacColl profile image
MacColl in reply to dunnellon

Thank you - much as I dislike the scans in case all is not well, it's good that this one was found quickly, The first was only found after it had caused a seizure during the night in April last year.I always need to have two scans: a CT in radiology, and then up to the Neurosciences dept for an MRI. (I ask the first to leave the cannula in to avoid having two). Last month, the lung CT was stable but the brain MRI showed this new small one.

Very grateful to have the Gamma Knife unit in Leeds, but as far as I know, it's only set up for brain and neck tumours.

I must ask about this type of treatment for lungs next time we see the consultant.

dunnellon profile image
dunnellon in reply to MacColl

I wasn't offered Gamma for my meningioma tumor. My lung tumor was found due to a PET scan ordered by the neurosurgeon after a meningioma was found on an MRI. The M was in my spine, C3-C5 and removed surgically. I was to the point of numb hands and foot and gait was off and trippy and I had allodyinia from my armpits down. The allodynia went away immediately. The hands still have numb thumbs and the toes of the foot remain numb but, all in all, liveable....good enough to happy dance!👍

Carnival567 profile image
Carnival567

So pleased for you 💕

dunnellon profile image
dunnellon in reply to Carnival567

Thank you Carnival567!

jackdup profile image
jackdup

That really is awesome to hear. Good luck in the future tests and pray it will not return.

dunnellon profile image
dunnellon in reply to jackdup

We all know anything can happen and that's why we dance when the music is sweet, right?! Thanks for the good wishes!

Kristicats profile image
Kristicats

Well done 👏👏

dunnellon profile image
dunnellon

Wishing a happy dance for all!

r0yalalbert profile image
r0yalalbert

What a wonderful happy dance you all had,so pleased for you.

dunnellon profile image
dunnellon

Thank you rOyal Albert! It was quite a jump! Thank goodness no cameras!

Debs_ALUK profile image
Debs_ALUKPartnerBritish Lung Foundation

So pleased to hear this👍

dunnellon profile image
dunnellon

Thank you Debs!

Osha profile image
Osha

Wonderful news dunnellon. I am just waiting to hear when I can get cyber knife treatment. Mine us in the same place as yours

Osha profile image
Osha

Hello dunnellon. Wonderful news I’m so glad for you

dunnellon profile image
dunnellon

Hello Osha. I'm sure you're looking forward to your CyberKnife treatments! It's an awesome machine. I nicknamed it "Badass"! Let us know how it goes for you.

😊

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