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chubby2x22 profile image
13 Replies

Goid news and mixed up news . Oncologist rang to say bowel clear, liver spot melted away.,biopsy undefined at local source so sent to Nottingham. Most likely lymphoma. Whats happened to psoriatic?, I asked about lymphoma as I had no idea and he said he didn't deal with it but would transfer me ASAP. So playing the waiting game again,seems whatever I have has got to all parts of my body except my big toe. I get a diagnosis then the tune changes to its melted away.. in the meantime its 10 days since my last chemo hopefully the side effects begin to fade, and I really do not want any more. If any one has lymphoma I would appreciate info. Suns shining better go tackle some weeds.. enjoy your weekend. Mixed up jane

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chubby2x22 profile image
chubby2x22
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13 Replies
sassy59 profile image
sassy59

I can understand you feeling rather mixed up Jane. There’s some fairly good news there but nobody I know has had or has lymphoma so I can’t comment on that. Perhaps someone else will come along with some information on that. I’m just hoping you don’t have to wait too long.

Enjoy the sunshine and being in your garden. Thinking of you.

Love and hugs, Carole xxx💖❤️💞

Hollyjt profile image
Hollyjt

Hello Jane, Sorry your having mixed up feelings I can understand that but a lot of very good news. I hope you haven't got to have anymore Cemo and you will start to feel a lot better in your self. I'm still playing the waiting game but might have some news on Thursday from Freeman and other things are coming up all the time too. I don't think I can carry on like this much longer. It's a lovely day here the sun is shining enjoy your gardening . Keeping you in my thoughts and wishing you all the very best. Take care mixed up Holly 💖x

CDPO16 profile image
CDPO16

No wonder you feel as you do Jane when your path seems to go in so many different directions. I'm glad that you are beginning to get over the side effects of chemo and hope that the new referral for the suspected lymphoma doesn't take too long. Best wishes xx

skischool profile image
skischool

Jane there is an NHs link to Lymphona,i will put it on here but let you decide if you want to read it at the moment or await your next consultation. but i do like one of the statements it contains,and i quote"Overall, most cases of non-Hodgkin lymphoma are considered very treatable."

Wishing you the best possible treatment and the best possible outcome.

Ski's and Scruff's x

nhs.uk/conditions/non-hodgk...

🙃😻

chubby2x22 profile image
chubby2x22 in reply to skischool

Thanks you two adorable friends. Jane

Alberta56 profile image
Alberta56

Wishing you all the best and Holly too.xxx

Carnival567 profile image
Carnival567

Hoping all goes well for you x

watergazer profile image
watergazer

Gosh I would be mixed up too Jane. At least there’s some good news enjoy being in your garden in this lovely weather X

Izb1 profile image
Izb1

Mixed up news but some of it good. Keep being positive and enjoy the weather, rooting for you x

Bkin profile image
Bkin

Hi Chubby, if you suspect lymphoma, I would go to your hospital website and search same also lymphodema. I've not had either but warned about it in the cancer care clinic after surgery and those who had treatment.

You may have already checked info on NHS but in case not here are a couple of links:

nhs.uk/conditions/lymphoedema/

nhs.uk/search/results?q=lym...

Very best wishes in your recovery from the chemo and surgery.

Thinkhealthy profile image
Thinkhealthy

Hi - the only thing I know about lymphoma is that two people I know are in remission . One friend wrote about his experience in a book - he had lymphoma in his groin - embarrassing- and in Italy - tricky with language and not being resident . He had phenomenal care and has had the all clear about 2 1/2 years after diagnosis . Hope this helps to boost your confidence about beating it !!

If you can cope with some very bad language and are interested I’ll give you the link to the book .

Wish you all the best xxx

chubby2x22 profile image
chubby2x22 in reply to Thinkhealthy

That's good, I love a good read , bad language will spice it up. Jane

Thinkhealthy profile image
Thinkhealthy in reply to chubby2x22

The book is called “making a run for it” by Rob Moles. Rob and Sue are friends of ours who took a risk and set up a new business in New Zealand. After their adventure went rollercoaster they ended up in Italy where Rob was diagnosed with Lymphoma . His language is very “aghhh” but it’s a good read - and he is now in remission after treatment and doing great .

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