I haven't done any posts for a while. I have IPF. Last year I became very ill and husband called an ambulance, I was in A&E for 9 hours, the bed was so hard my backside was numb, they put me in an emergency dependence ward with severe pneumonia after 5 days was transferred to a general ward I had never been in hospital for more than 3 days. Lots of funny things happens, like the 99 year lady who is asked if she wants toast and jam and she says, no she wants toast and jam and so on, like the patient who gets up in the middle of the night and goes and drink the water from the other patients and opened all he cupboards, and there was a lady who wanted to get in my bed, and so on. After 2weeks I went home.
But my real nightmare started a week later when I was taking to A&E again , this time spent 12 hours there, after many discussions I was put in an isolation ward as they thought I had covid. There was one man in there, and this was a funny one, at 3 in the morning he said, Margot are you awake, I said yes, then he said come here I want to show you something,! Luckily a nurse came in and he didn't ask me again. The next day I was very angry with the doctors, the previous weeks I had 3 covid tests, all negative, I told them if I was to be in that ward i would be going home so very soon afterwords I was out in a general ward. I was told then that I had pneumonia again (the previous year my consultant said if I got pneumonia I would not come out again!) I was sent home 2weeks later, those 2weeks I was there have been the worst time I had in my life.
3 weeks later I became very ill again, chest pains severe breathlessness, pain in my lungs, awful pain in my ribs, I told my husband I sooner jump of a cliff than going to hospital again. Luckily enough a nurse from the hospice called to check on me, on hearing my condition she came the following day, after her visit a few few days later a district nurse came, on seeing me she said she would arrange for me to go to the hospice the next day. My daughter and son in law came the following day to say good bye. Before leaving the house I had a blackout, damage my glasses and my face was black and blue, on top of everything else. So I realised that I would be in the hospice for end of life care, and you know what, I was happy, I didn't want to continue the way I was. But the wonderful people at the hospice helped me and nursed me and brought me back to life. It's two and a half months I left the hospice, I'm house bound now, the nurses call me they visit and they give anything I need and I'm still here alive and kicking as the say go and I'm happy for the chance of having extra time with my family.
Sorry for the long post, but I wanted to tell my story, thanks for listening too.
Margot🤗
Written by
Margot13
To view profiles and participate in discussions please or .
Oh Margot what a wonderful story, thank you for sharing here. Despite your ordeal and horrific experiences you found joy again in the hospice and now back at home. I am sooo happy for you
I did have to laugh at the other patient mentioned in paragraph 2 Jees some men just don't give it rest do they lol xox
Huge love and thanks to you for sharing your story. xoxoxo
Wow that’s some story Margot. What an ordeal you’ve been through yet here you are....still with us. That’s a brilliant testimony to your hospice and the care you’ve been given.
It’s good to hear from you and great to read your story. Such a privilege.
Thinking of you dear lady and sending love and very good wishes to you.
What a story Margot and what an outcome! Hospices do such wonderful things, not just for the patients, but for their families too. It is wonderful to hear you are back home again :)Sending love and hugs, Laurie xx
Goodness, and what a story. I am so glad that you went to the hospice. They are brilliant. And offer a totally different type of care from hospitals. Thank you so much for posting your experiences. It took some effort, courage, honesty and humour to write it all down.Be gentle with yourself
Wow, you sound like another amazing woman here! Goodness you’ve been through so much but you are still here to share your story, and hopefully have many more days with your family 💕Hugs 🤗 for you x
Hi Margot so pleased that you are now feeling so positive after such a traumatic experience lt does feel so good when you are in the care of health care professionals that you trust. Enjoy your time with your family x
What a terrible ordeal. I'm so glad going to the hospice helped you to get better and to have time with your family. Sending you lots of good wishes 🐑🤗
Oh dear! Hospital is tolerable when you have your own room but wards can be held! My eldest daughter was in recently and put into a ward, her experiences were very like yours. She burst into tears and they eventually moved her into her own room!
What a story !! It’s amazing how the right staff can nurse you back to health and give you joie de vie again. The hospice certainly was the best option for you. Take care and thanks for sharing. X Anita
So glad you got to spend more special time with your family after the wonderful care you received in the hospice. Love your humour, resilience and continued optimism. All best wishes and hugs x
Margot , glad you got the help and care from the hospice which has given you extra time with your family. I too have IPF and am in year 5 of this illness , so am always interested in fellow sufferers journeys through this awful illness.I read this post with great emotion for you and myself for the months ahead, like you I haven’t spent any time in hospital ( apart from 48hrs for a gall bladder op) and the thought of the hospice feels me with great sadness , so it was a real comfort to read of Your experience there, and kind off turning a corner in a positive way. So thank you for sharing that experience. Take care and I hope you have more good days that not. Warmest wishes 💐
Hi Margot what a brave person you are and i am sorry to hear about your trials and tribulations. I had very similar experiences in hospital and vowed i would never go back, despite all the lovely staff some are not so lovely and one hand doesn't speak to the other but no one mentions that. I am pleased you are at home and can see your family, take care best wishes.
Oh! Margot what a sad state our hospitals must be in, not very good care given. I would send your letter to the hospital concerned and let them know just how bad things have become in their wards. The good thing is you have been given excellent care in the hospice who have nursed you back to life, which is wonderful for you. I wish you all the best and hope that you can live your life in comfort and be happy. Love and hugs Irene x
It’s not the first time we’ve heard of such things in hospital wards. It’s not acceptable that people with dementia are in the same wards as people without. Not exactly an atmosphere conducive to regaining your health if you’re spending your nights repelling boarders! I’m so pleased that the hospice managed what the NHS couldn’t and got you well enough to go home.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Jees some men just don't give it rest do they lol xox 
update on hospital visit
BC Which Hospital Update _ and eyesl
My dad graduated from ICU today! Severe Pneumonia 
