I have just been out of action for 8 weeks with Occipital Neuralgia. Has anyone experience of this condition? It is so very painful.
Occipital Neuralgia : I have just been... - Lung Conditions C...
Occipital Neuralgia
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PurpleMist
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29 Replies
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No experience but I’ve heard of it. Sounds dreadful. Are you feeling better now? Hope you’re getting all the help you need. Take care xxx
Thank you for your concern. Had an MRI at the weekend. My doctor rang today and the problem is caused by my discs pressing on nerves and degenerative arthritis. Hopefully medication will help in some way. XX
I can only imagine how painful that must be. I hope that your GP is able to give you some effective medication
I am on Oramorph for the time being. Thank you for your concern.
I hope that gives you some ease. Do let us know how you get on.
The Oramorph does help along with gentle heat on my neck.
Oh so sorry to hear this. My friend had this & she said it was so painful. Do hope medication is working for you now
Thank you.
Sorry, I had never heard of it before but just Googled it. I take it that you have read up on all the things you can do to relieve the pain and tried different things?
My hubby had a slipped rib last December and was in terrible pain as it also pressed on a nerve. He also got Oramorph for it, but this didn't really help him as it wares off quite quick. He went on a slow relieve Tramadol with paracetamol 4 times a day and this was better in his case. Maybe worth a try and ask your GP about it.
Make sure you don't get constipated. Morphine will do that to most people. Maybe your GP already gave you some meds for that in case.
I hope you will find something that helps. x
Thank you. I can't take Tramadol as it makes me sick. I too take Paracetamol as well. I guess it's just a case of see what helps. I have Asthma and Bronchiectasis so am allergic to some medications. X
I don't have occipital neuralgia but do get migraines. Stretching exercises can make a difference. I got my exercises from physios and osteopaths, so I know they're OK for me. You could try the chin tuck described on this page - as it says, stop immediately if it causes you more pain. spine-health.com/wellness/e...
Thank you will take a look.
Hi it is a horrible condition. I have neck problems due to severe osteoarthritis. The doctors believe this causes my occipital neuralgia. It comes and goes without me being able to find the trigger. I find a gentle heat at the bottom of the neck helps but mainly I take opiate based medications.
Yes it is horrible. I find along with the meds gentle heat does help. Wishing you well.
Where do you get the pain
The burning pain started in the back of my head and neck and progressed to shooting pains intermittent more on right side of head it was a permanent feature until I have been put on neurontin.doc sent me to physio but he said it wasn’t muscular.the neurontin have helped with shooting pains in my head but I have this hypersensitivity in my scalp where brushing and washing my hair triggers the pain. also can’t lay my head on a pillow because of the burning sensation I get so have to sleep more or less sat up. I am hoping
my GP is going to refer me to a specialist I can’t continue like this.i have had this condition for nine weeks.if I don’t push my GP on this he will gladly just dismiss me .
This sounds very painful. I hope you find some relief soon.
Thank you.
I sympathise with you because I have experience of this excruciatingly painful condition. Strong painkillers seem to be the only effective treatment. I have never found out what causes it - my GP shrugs his shoulders and says "just one of those things"! Good luck and stay strong!
Thank you. In my case the discs are pressing on the nerves. This is the first time though that it has effected the Occipital Nerve. Good luck to you too.
I hope your GP can find a suitable combination of medicines and other treatments to ease the pain. This sounds a horrible thing. best wishes for speedy relief.
Thank you.
Hi, I found some pain relief from this natural remedy. It says it is for trigeminal neuralgia, but I contacted customer services and they assured me that reduced occipital neuralgia pains too.
No drugs involved, be sure to put it on the soles of your feet at bedtime. Weird but amazing, it helped me sleep too.
I got it from healthproductsbusiness.com/...
Best Wishes
Francis
Thank you will check it out.
Yes having a nightmare trouble is getting a right diagnosis been thrown from pillow to post.mine as started after a bang to the top of my head I am hopefully going to get referred to the right channels.started off going to AE they did nothing treat it as migraine went to doc he said pulled muscle in my neck gave me physio to do 3 days after my symptons have got worse spent last 2 nights sat up in bed with cushions propping me up .the pain is seeding burning pain in my neck and the back of my head it is constant with intermittent pains in the head.the last 2 nights it is even painful to put my head to the pillar the aim seems to settle underneath my head it’s dreadful . Pain killers don’t work I have got naproxen tabs
I have got deep heat that made it worse deep freeze gel does nothing
any tips on pain relief.what is your story
Yes I had a trauma to the head and that’s what started this very painful condition that is never ending pain
I use heat , massage and stretching exercises for my neck problems May help you too PurpleMist. Hope you’re out of pain soon x
